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caregivers | Danny van Leeuwen Health Hats

Honor Supporting Cast, Stars of Disabling Conditions. Part 1

By Advocate, Caregiver, ePatient, Family man, Podcasts No Comments

Terri Tomoff wrote The Focused Fight, bringing a 2-year-old through 5 cancers over 20 years. We hear from whole family. Each star & supports. Help the Helpers. Read More

Chronic Pain. A Jealous Narcissist.

By Advocate, Caregiver, Clinician, ePatient, Podcasts, Researcher One Comment

Life with chronic pain is being a stranger in a strange land whether you have the pain, live with someone who experiences chronic pain, or treat people with chronic pain. You all have much in common and little in common. The more we can speak the same language, use the same descriptors, and shortcuts, and understand each other’s dreams and pressures, the better we function as a team. Penney Cowan’s American Chronic Pain Association is for the whole team.

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Family Practice – The Cornerstone of My Team

By Caregiver, Clinician, ePatient, Podcasts One Comment

I love my family doc. If you’re not happy with your primary care doc, find someone you trust to help you find another one. She’ll be your cornerstone. Interview with Dr. Laura Zucker.

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Employed Family Caregivers – The Difference Collaborative

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My compatriot, Geri Lynn Baumblatt, consults and advocates on the overlapping worlds of employees, family caregivers, employers, and support, especially in nursing. In short, bread winners also caring for family and friends with acute and chronic illnesses and disabilities. I picture these overlapping worlds as balloons mashing up against each other trying not to burst. If you’re a nurse, an employer, a boss, or a caregiving staff member, this chat about the Difference Collaborative is for you.

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Retirement – Micro-stepping with Mini-goals

By Caregiver, ePatient, Family man, Musician, Podcasts 2 Comments

Cynthia Meyer created the Second Wind Movement for retirees to live their best life. She teaches mini-goals and micro-stepping towards the 5 Rings of Retirement, Growth, Health, Finance, Community, and Giving Back. Listen in or read on.

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Partner with People at the Center End-to-End

By Advocate, Caregiver, Clinician, ePatient, Informaticist, Leader, Podcasts, Researcher No Comments

Despite what anyone tells you, Clinical Decision Support (CDS) is an experiment. It only gets better with use. We, patients and caregivers, should try it, whatever it is, and learn. Learn what helps us make decisions and what doesn’t.

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Lessons from the Clowns When Going to the Doctor’s

By Caregiver, Clinician, ePatient, Family man, Podcasts One Comment

What can the clowns can teach us as patients and caregivers about relaxing, reading the room, figuring out what you’re there to do, and not ending up more stressed than you went in. Maybe even having a bit of fun. In this podcast we will speak with Jason Stewart, a clown at Boston Children’s and listen in on a working session I led at the National Caregiving Conference in Chicago this past November, entitled, Reading the Room and Yourself. Lessons We Can Learn from the Clowns When We Go to the Doctor’s Office.  Lessons from the clowns? Humor, humanity, failure. Reading the room. You are not alone. Read More

Health Hats: Reflecting on 2017

By Advocate, Caregiver, Clinician, Leader, Researcher No Comments

Since I stopped being an employee or a boss two years ago I’ve written annual reports for myself. I had written ones for my boss and staff for 25 years straight. I thought I’d keep it up now that I’m retired from that. Helps me be sure that my work serves my mission. With so much to do in this sick, sickness industry, it’s easy to feel disappointed and burned out. Fortunately, I’ve made a career of beating low expectations – starting with something truly disappointing and finding the small thing that can have an outsized impact by moving that something a lasting inch. I call them levers for best health. I’ve found that drinking water has the most outsized impact for best health. Anyway, the annual report helps me keep a pulse on the balance between impactful work and stoking my fires while managing my health and having fun. It’s an inspiring strange ride. Thanks for being on the ride with me. I couldn’t do it without the personal inspiration of my immediate family (Ann, Simon, Ruben, Jessica, Kate, Anica, Jacky, Leon, and Oscar) and my friends (Mary Sue, Sue, Michael, Kathy, Fatima, Regina, John, Geri, MaryAnne, and Pat). Read More