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PCCDS-LN

CDS. Listen, Learn, Informed Choice.

By Informaticist, Podcasts, Researcher

How can we scale patient-caregiver engagement in CDS (Clinical Decision Support)? CDS as learning health systems? Interview with Lacy Fabian at MITRE and Ed Lomotan at AHRQ. CDS Connect a library of medical recommendations made useful for programming into electronic records, apps, and software so patients, caregivers, and clinicians can use them as they make choices together.

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Partner with People at the Center End-to-End

By Advocate, Caregiver, Clinician, ePatient, Informaticist, Leader, Podcasts, Researcher

Despite what anyone tells you, Clinical Decision Support (CDS) is an experiment. It only gets better with use. We, patients and caregivers, should try it, whatever it is, and learn. Learn what helps us make decisions and what doesn’t.

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Pain Management Choices: One Person’s Point-of-View

By Advocate, Caregiver, Clinician, ePatient, Informaticist, Leader, Researcher

Pain and choices mix, but not too well. A sudden new pain requires professional attention and a pill – I gotta get over this. With severe chronic pain, I pray for some choices that I know might work. I want choices to prevent the pain – a routine. When the pain breaks through I want at least four things I can try. First non-drug that I can do myself (like heat, cold, vibration, meditation), then non-drug help from others, (say, massage, chiropractic), then less side effect drugs (Tylenol, cannabis…).  Finally, pocket therapy – something I’d rather not take, but it’s good to have in my pocket, just in case. So, that’s me in particular circumstances.

Almost everyone with chronic illness experiences chronic pain. Chronic pain in the US costs more than $600 billion annually in health care costs and lost worker productivity. I attended and presented at the Agency for Healthcare Quality and Research (AHRQ)-supported Patient-Centered Clinical Decision Support (PCCDS) Learning Network annual meeting (phew, a mouthful!) focused on decision-making in pain management and reducing opioid use. My job was to keep it real.

Please find the audio and slide deck here on my YouTube channel. It’s 44 minutes long with the Q&A portion. Here you can find my web resource page with other pain management resources. It’s a work in progress and will grow over time. Feel free to use any or all of it. I operate under Creative Commons. That means: please give me credit (attribution by Danny van Leeuwen/Health Hats). You can stop reading here or read a brief summary of the talk below. Read More