Danny

Caregiver Consumer ePatient Leader Written Only

Tell me the damn cost up front!!

Did you read the Sunday New York Times' article about the $117,000 surprise medical bill?…

DannySeptember 22, 2014

Advocate Caregiver Clinician Consumer ePatient Written Only

Expanding Engagement and Capabilities of People at the Center

Some people want someone else to be the leader in their health care journey. Others…

DannySeptember 14, 2014

Advocate Caregiver ePatient Family man Leader Written Only

Caregivers Have Other Lives Too

I'm amazed at what people are capable of. This week I met a nurse leader…

DannySeptember 8, 2014

Caregiver ePatient Written Only

People at the Center -> Person at the Center = Gaps

A dear friend, Vern Schmaltz, died this week of ALS. He had so looked forward…

DannyAugust 31, 2014

Advocate Caregiver ePatient Written Only

Leaning Tower of Babel – Give me my Damn Data?

Today I attended a meeting with 9 people, including me, speaking 5 languages - Mandarin,…

DannyAugust 24, 2014

Advocate Caregiver Clinician Consumer ePatient Family man Written Only

Understanding someone else’s experience – oh my!

Understanding someone else's experience - oh my, so hard! It's difficult enough to understand my…

DannyAugust 17, 2014

Advocate Caregiver Consumer ePatient Family man Written Only

Communicating End-of-Life decisions

My 87-year-old mother and I have had many chats over the past 15 years to…

DannyAugust 10, 2014

Advocate Caregiver ePatient Family man Written Only

Personal risk management – When s***t happens

When I ask my doctors what worries them the most about my future health, both my neurologist…

DannyAugust 2, 2014

Caregiver ePatient Family man Written Only

Quality of Life for People at the Center of Care

People at the center reflect often about quality of life - Sometimes in relation to…

DannyJuly 27, 2014

Advocate Caregiver Consumer ePatient Informaticist Written Only

EHR Access for the Family Caregiver

We're looking at technology that can help the primary caregiver support someone's health journey. Access…

DannyJuly 20, 2014