The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. Material on this site created by others is theirs and use follows their guidelines.

Another informative blog coming your way!

We've got a new blog out this morning. Many survivors struggle with vestibular issues such as dizziness and balance problems.

Give the blog a read. Visit here: https://www.powerofpatients.com/blog/dealing-with-dizziness-and-balance-problems-with-tbi

#PowerofPatients #Balance #Dizziness

Help support Society for Participatory Medicine Travel Fund by donating or retweeting. https://paypal.com/donate/?business=donations@participatorymedicine.org&source=url

BUILD provides opportunities for young adults to find their footing and self-confidence through entrepreneurship. We need them. Betsy Neptune tells us more. Full 32-min episode here https://health-hats.com/pod174/ @BUILDinBoston @BUILDNational

#MentalHealth Care: Last Week Tonight with John Oliver (HBO) https://youtu.be/jtIZZs-GAOA via @YouTube very well done

We're often asked how value assessment patient input can be scaled for population-level decisions. In @Health_Affairs, the authors describe their proof of concept, which uses a IVI & RAND survey to ascertain & prioritize goals for people living with RA.https://www.healthaffairs.org/content/forefront/scaling-patient-perspective-use-health-technology-assessments

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As an action catalyst, I learn with people on the journey toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

  • Patient with Multiple Sclerosis
  • Care partner for several family members’ end-of-life journeys
  • Nurse for 40+ years
  • Informaticist
  • QI leader
  • Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

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