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Pain and changing abilities. Maintaining optimism.

@thepaincompanion @thefibromama @theACPA @thedisableddiva @mightycasey

#abilities #ChronicPain #HealthGoals #music #sax #MS #MultipleSclerosis #TPFAlumni #VirtualVisits

I just published Life without sax? Adapt to changing abilities.
Listen here

Check out my latest article: Life without sax? Adapt to changing abilities. via @LinkedIn Listen to full episode here

Who is at the table?

@NACHC @PCORI @OCHINinc @alliancecchs @myopennotes @reginaholliday

#ContinuityofCare #Interoperability #Outpatient #MaternalHealth #MaternalMorbidity #HealthDisparities #Inequities #pregnancy #Transitions #TPFAlumni

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Recent Blog Posts:

July 25, 2021

Life without sax? Adapt to changing abilities.

Abilities changing. Can’t play my horn. Acute pain on top of chronic pain. Need new solutions. Right-sizing virtual and in-person visits. Maintain optimism. (more…)
July 18, 2021

Systemic Disparities & Inequities in Maternal Health. Still?

US worse in maternal mortality among rich nations. Black women 2.5x more likely to die than white women. Drs. Whitt & Masinter discuss fragmented care and info. (more…)
July 11, 2021

Healthcare is Hilarious. Continuing Mets Saga. Hospital. Home.

Mighty Casey Quinlan's #MetsParty returns from the hospital. Worth it. Took control. Alive, cooking, eating, working. Piss and vinegar. Pasta. (more…)

As an action catalyst, I learn with people on the journey toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

  • Patient with Multiple Sclerosis
  • Care partner for several family members’ end-of-life journeys
  • Nurse for 40+ years
  • Informaticist
  • QI leader
  • Husband, Father, Opa, Musician

I specialize in patient/ caregiver/ clinician/ community relationships and the intersection between technology and the health journey.

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