Written Only

Caregiver Clinician Consumer ePatient Family man Informaticist Leader Written Only

What is Health Data? An Introduction for Anyone

I took a week off. I unplugged to attend the memorial service for my mom. Thanks…

DannyMarch 8, 2015

Advocate ePatient Informaticist Leader Written Only

A magic lever to best health – data and information

I work in a human services agency. We support individuals with disabilities. We help people…

DannyFebruary 22, 2015

Clinician ePatient Family man Musician Written Only

Mistakes – Finding your Groove Again

We make lots of mistakes improvising while playing music in my jazz combo - wrong…

DannyFebruary 15, 2015

Advocate Caregiver Consumer ePatient Family man Written Only

Adjusting to new chronic illness

Adjusting to new chronic illness involves moving away from traditional medical/doctors/health care system to controlling controllable…

DannyFebruary 8, 2015

Advocate Caregiver Clinician Consumer ePatient Leader Written Only

Satisfaction, Smatisfaction – any good?

More and more often I'm receiving satisfaction surveys from providers of health care Interesting concept: satisfaction. Satisfaction with…

DannyFebruary 1, 2015

Caregiver Consumer ePatient Family man Written Only

Take a break – now

Today I'm bone tired. Tired of grief, tired of having MS. Interesting how physical health…

DannyJanuary 25, 2015

Advocate Caregiver Clinician Consumer ePatient Family man Informaticist Leader Written Only

Values for Managing Health

As I transition out of this episode of my life with the passing of my…

DannyJanuary 18, 2015

Advocate Caregiver Consumer ePatient Written Only

Labels – DisLabels

I'm disabled. Iidentifyashaving a disability. Someone else says I'm disabled. Do Ihave a disability? I'm…

DannyJanuary 11, 2015

Advocate Caregiver Consumer ePatient Family man Written Only

Who’s your health co-pilot?

As an e-patient advocate, I passionately believe in each of us being the pilot for…

DannyJanuary 4, 2015

Caregiver ePatient Family man Written Only

Closing the loop – the last P – Parting

Closing the loop with grief. The P's of dying pile up - the first six…

DannyDecember 28, 2014