Caregiver

Caregiver Consumer ePatient Family man Written Only

Take a break – now

Today I'm bone tired. Tired of grief, tired of having MS. Interesting how physical health…

DannyJanuary 25, 2015

Advocate Caregiver Clinician Consumer ePatient Family man Informaticist Leader Written Only

Values for Managing Health

As I transition out of this episode of my life with the passing of my…

DannyJanuary 18, 2015

Advocate Caregiver Consumer ePatient Written Only

Labels – DisLabels

I'm disabled. Iidentifyashaving a disability. Someone else says I'm disabled. Do Ihave a disability? I'm…

DannyJanuary 11, 2015

Advocate Caregiver Consumer ePatient Family man Written Only

Who’s your health co-pilot?

As an e-patient advocate, I passionately believe in each of us being the pilot for…

DannyJanuary 4, 2015

Caregiver ePatient Family man Written Only

Closing the loop – the last P – Parting

Closing the loop with grief. The P's of dying pile up - the first six…

DannyDecember 28, 2014

Caregiver Clinician Consumer ePatient Family man Written Only

The end – not alone

Journey's end - team effort - for ender, family and family caregivers. This post is…

DannyDecember 22, 2014

Caregiver Clinician ePatient Family man Written Only

Last days – a bittersweet journey

She's walking on a people mover. You know, the moving sidewalk in an airport. My…

DannyDecember 14, 2014

Caregiver ePatient Family man Written Only

Shrinking world, shrinking control.

Shrinking world, shrinking control. As my mom progresses through this ending period of her health…

DannyDecember 7, 2014

Caregiver ePatient Family man Written Only

Humor in a Once in a Lifetime Experience

Today my mother said this was a once in a lifetime experience. Ha. What a…

DannyNovember 29, 2014

Caregiver ePatient Family man Written Only

Journey’s end – Goodbyes

My mom is saying goodbye. Goodbye to family, friends, and now peripheral health team members.…

DannyNovember 24, 2014

Take a break – now

Values for Managing Health

Labels – DisLabels

Who’s your health co-pilot?

Closing the loop – the last P – Parting

The end – not alone

Last days – a bittersweet journey

Shrinking world, shrinking control.

Humor in a Once in a Lifetime Experience

Journey’s end – Goodbyes

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