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Researcher

Apples-to-Apples? Person-First Engagement & Power Shifting.

By Advocate, Caregiver, ePatient, Podcasts, Researcher

The powerful are not homogenous. The person-first approach (meet people where they are) can help us better strategize and advocate for partnership and shared decision-making in health choices, research, practice, policy, or equity. Read More

Nine family members (4 children) on one scooter One in bucket and one in backpack

The Last Mile. From the Vial to the Arm.

By Advocate, Informaticist, Leader, Podcasts, Researcher

Where are you and your team on the continuum of engagement and partnership with patient-caregivers? Partnering is a long-term relationship. Fortunately, partnership breeds more engagement and more partnership. Take one more step on the continuum.
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2021 Holiday Letter: Trust

By Advocate, Caregiver, Clinician, ePatient, Family man, Leader, Musician, Podcasts, Researcher

Overflowing with gratefulness in the New Year. Connection, family, music, activism. Sobered by grief for 1000s of lives lost each day. Theme this year: Trust. Read, listen, or watch this episode. Read More

Help the Helpers! Care for Healthcare Workers Now!

By Caregiver, Clinician, Podcasts, Researcher

I fear our limited capacity to care for each other during COVID-19. It’s not beds or equipment, rather a limit of caring people with expertise. All sorts of expertise. It’s a finite pool that we need to invest in and support for the long term – two weeks, a month, a year. I know many burning out expert healthcare workers ready to throw in the towel. Learn about Project COPE

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