Our Best Selves

Caregiving.com

Resource Type: Organization

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When you care for a family member or friend, we care for you. We’re a community of supportive individuals caring for a family member or friend. We care for parents, spouses, siblings, grandparents and anyone we consider family. We care for you before, during and after caregiving. Create your free account to join our daily, weekly and monthly chats, to start your blog and to connect with others who understand.

Thoughts:

As a caregiver I find caregiving.com to be varied and deep. I especially like the 6 stages of caregiving (I May Help, I am Helping, My Role Has Ended, etc.) I was delighted to hear a podcast on caregiver sexuality. Denise Brown leads this fine effort.

Links:

https://www.caregiving.com/

https://twitter.com/caregiving

https://www.facebook.com/CaregivingSupport/

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Atlas CareMaps

Resource Type: Tools

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Caregiving happens within an ecosystem. Caregivers and the ones they care for are situated in systems of support, connected to others through networks and webs of relationships, shared experiences, and interactions.

At Atlas of Caregiving, we believe that in order to improve systems, we must first understand them. In this spirit, we’ve made it our mission to create practical tools that build on our understanding of the experiences of family caregivers while helping families and professionals better understand, and ultimately improve, their own lives. The first of these tools is the CareMap.

On this site, we have provided in detail  all the instructions and support you will need to draw your own CareMap.
On the Draw Your Own CareMap page, you will find a video that walks you through using the CareMap tool. You will also see Key Features and Tips.
On the Hand-Drawn CareMaps page, we have provided you video and instructions on how to draw a hand-drawn CareMap.
All CareMap instructions are available in Spanish, too. For the hand-drawn instructions, click here.

Thoughts:

Nice

Links:

https://atlasofcaregiving.com/practical-solutions/atlas-caremaps/

Engaging Family Caregivers as Partners in Care Transitions

Resource Type: Article

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A United Hospital Fund Special Report by Carol Levine and others. The goal: to take on the challenge of examining how chronically ill patients are transitioned
from one care setting to the next, and how that transition could be improved by systematically involving family caregivers and arming them with better information, training, and support. Specific strategies to achieve that goal were:
• Inclusion of the family caregiver in medication reconciliation;
• Identification of post-discharge patient needs and discussion of patient discharge options with the
family caregiver;
• Discharge preparedness (training, expectations of the day of discharge);
• A well-orchestrated day of discharge;
• Closing the loop, including post-discharge communication with the family caregiver and the
receiving agency

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A book published in 2013. Pretty good

Links:

https://uhfnyc.org/publications/880905

AARP videos: Male Caregivers

Resource Type: Videos

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In many respects, male caregivers resemble their female counterparts. Yet, men, be more uncomfortable with hands-on personal care, although such intimate interactions can be difficult for caregivers of any gender. They say they are less likely to open up to others when they feel stressed or overwhelmed by caregiving responsibilities.

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Set of six short videos about men as caregivers

Links:

http://videos.aarp.org/search?q=male%20caregiving

Caregiver Statistics: Demographics

Resource Type: Article

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65% of care recipients are female, with an average age of 69.4. The younger the care recipient, the more likely the recipient is to be male. 45% of recipients aged 18-45 are male, while 33% of recipients aged 50 or higher are male. [National Alliance for Caregiving and AARP. (2015). Caregiving in the U.S.]
Upwards of 75% of all caregivers are female, and may spend as much as 50% more time providing care than males. [Institute on Aging. (2016). Read How IOA Views Aging in America.]
Male caregivers are less likely to provide personal care, but 24% helped a loved one get dressed compared to 28% of female caregivers. 16% of male caregivers help with bathing versus 30% of females. 40% of male caregivers use paid assistance for a loved one’s personal care. About 14.5 million caregivers are males out of the 43.4% who care for an older family member. [National Alliance for Caregiving and AARP. (2009). Caregiving in the U.S.]

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Rich source of statistics

Links:

https://www.caregiver.org/caregiver-statistics-demographics

Men Are Family Caregivers, Too

Resource Type: Article

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About four in 10 family caregivers are men—sons, husbands, brothers, sons-in-law, or neighbors. We are nearly always ignored in discussions about caregiving, lost in the stereotype of the family caregiver as a 40-something daughter.

Thoughts:

Good intro article in Forbes

Links:

https://www.forbes.com/sites/howardgleckman/2017/04/12/men-are-family-caregivers-too/#2fc5a83571b3

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Healthy Humor

Resource Type: Website

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We are an arts organization whose professional performers create moments of joy, wonder, laughter and comfort for hospitalized children and all others who are most in need.

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Entertainers in the hospital. Good stuff

Links:

https://www.healthyhumorinc.org/

https://twitter.com/healthyhumorinc

https://www.linkedin.com/company/healthy-humor-inc./

https://www.facebook.com/healthyhumorinc/

https://www.instagram.com/healthyhumorinc/

Proponents of Play

Resource Type: Website

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WORK AT PLAY. PLAY AT WORK.
PLAY IS THE MEANS BY WHICH ALL PEOPLE LEARN & DEVELOP.

Thoughts:

Bringing humor into the workplace

Links:

http://www.proponentofplay.com/

https://twitter.com/ProponentOfPlay

https://www.facebook.com/ProponentOfPlay?ref=hl