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Medical Marijuana – A Strange Trip Indeed ePatientResearcherUncategorizedWritten Only

Medical Marijuana – A Strange Trip Indeed

I received my medical marijuana card from the Massachusetts Department of Health a couple of…
Danny van Leeuwen
Danny van LeeuwenOctober 14, 2018
Putting Patients at the Center of Pain Management Decisions AdvocateCaregiverClinicianePatientInformaticistResearcherUncategorizedWritten Only

Putting Patients at the Center of Pain Management Decisions

Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS)…
Danny van Leeuwen
Danny van LeeuwenOctober 7, 2018
MS: My Door to Peak Performance ePatientWritten Only

MS: My Door to Peak Performance

It's been a strange week post-infusion.  The infusion wore me down. My pathological optimism took…
Danny van Leeuwen
Danny van LeeuwenSeptember 30, 2018
Power, Fear, Lack of Empathy AdvocateFamily manLeaderWritten Only

Power, Fear, Lack of Empathy

Photo of Ruth and Ruben van Leeuwen circa 1947 I was riding my trike this…
Danny van Leeuwen
Danny van LeeuwenSeptember 23, 2018
Patient Engagement – Careful What You Wish For Girl blowing dandelion seedsAdvocateCaregiverClinicianePatientLeaderResearcherWritten Only

Patient Engagement – Careful What You Wish For

I'm often asked about my take on patient engagement. These buzzwords are losing their meaning.…
Danny van Leeuwen
Danny van LeeuwenSeptember 16, 2018
Advocacy Pearls AdvocateWritten Only

Advocacy Pearls

Someone asked me for my pearls of wisdom from my journey as a patient/caregiver activist.…
Danny van Leeuwen
Danny van LeeuwenSeptember 9, 2018
Managing Pain – A Reality Check AdvocateCaregiverClinicianConsumerePatientInformaticistResearcherWritten Only

Managing Pain – A Reality Check

Last month I asked for a reality check from my social networks on behalf of…
Danny van Leeuwen
Danny van LeeuwenSeptember 2, 2018
More: Journal for Best Health ePatientWritten Only

More: Journal for Best Health

Julie Holliday, a reader of last week's post, wrote: I found this post very difficult…
Danny van Leeuwen
Danny van LeeuwenAugust 26, 2018
Journal for Best Health ePatientWritten Only

Journal for Best Health

For me, the work of maintaining best health with a chronic disease takes large parts…
Danny van Leeuwen
Danny van LeeuwenAugust 19, 2018
National Action Plan to Better Manage Pain Black & white double exposed photo with hands over person's face. Eyes show throughAdvocateCaregiverClinicianePatientInformaticistResearcherWritten Only

National Action Plan to Better Manage Pain

Everyone makes decisions about managing pain sometime in their lives. Most people with chronic illness…
Danny van Leeuwen
Danny van LeeuwenAugust 12, 2018
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    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
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Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact