adherence

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Patient Engagement – Careful What You Wish For

I'm often asked about my take on patient engagement. These buzzwords are losing their meaning.…

Danny van LeeuwenSeptember 16, 2018

Caregiver Clinician ePatient Written Only

Activated patient, nurse, with engaged doctors. Can’t reliably manage meds?!

My medication lists don't match and none of them reflect what I actually take. I…

DannyMarch 25, 2018

Advocate Caregiver Clinician ePatient Written Only

Reauthorize PCORI. We Need It!

I care about what works for people on their health journey. How do lay people…

DannyOctober 29, 2017

Advocate Caregiver Clinician ePatient Informaticist Leader Researcher Written Only

Should I or Shouldn’t I? Managing Uncertainty

Have you ever remodeled your kitchen? So many decisions: Cabinet style, drawers, finish, hardware, not…

DannyFebruary 26, 2017

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

Tales of Woe

From my memorable quotes pile: Harried caregiver: What are we supposed to do next? Instructions…

DannyFebruary 19, 2017

Advocate Caregiver Clinician Consumer ePatient Family man Uncategorized Written Only

Personal Health Goals

As a person with MS, I've written that my personal health goals are to…

DannyFebruary 6, 2017

Caregiver Clinician Consumer ePatient Leader Written Only

Transitions – What you don’t know can hurt you

Still exploring communication across transitions. This week speaking with clinicians. First, with case managers in…

DannyJune 12, 2016

Advocate Caregiver ePatient Family man Leader Written Only

Deconstructing the Tower of Babel

I've spent the week immersed in this communication dilemma in healthcare. As I've said before,…

DannyJune 5, 2016

Advocate Caregiver ePatient Family man Musician Written Only

Engaged with Sax

Shopping for a new neurologist I had three screening questions: What's your response time to…

DannyApril 2, 2016

Advocate Caregiver Consumer ePatient Informaticist Written Only

Changing habits – for people and payers

I love my health team. They help me stay tuned up with my chronic challenges…

DannyMarch 12, 2016