decision-making

Advocate ePatient Informaticist Leader Written Only

Notifying me when accessing my health data

Why don't I know when someone, something, anyone accesses my personal health data? I get…

DannyAugust 16, 2015

Advocate Caregiver Clinician Consumer ePatient Family man Informaticist Leader Written Only

Talking about Uncertainty

How do we people at the center of care speak about uncertainty in health among…

DannyJune 14, 2015

Advocate Caregiver Clinician ePatient Informaticist Leader Written Only

Uncertainty and Comparative Effectiveness Research

Last week's post began a discussion of managing uncertainty in the health journey. That journey…

DannyJune 7, 2015

Advocate Caregiver Clinician Consumer ePatient Informaticist Written Only

Managing Uncertainty – A Magic Lever for Best Health

People at the center of care (individuals, caregivers, family networks, and healthcare professionals) crave knowledge…

DannyMay 31, 2015

Advocate Caregiver Consumer ePatient Family man Written Only

Who’s your health co-pilot?

As an e-patient advocate, I passionately believe in each of us being the pilot for…

DannyJanuary 4, 2015

Advocate Caregiver Clinician Consumer ePatient Written Only

Expanding Engagement and Capabilities of People at the Center

Some people want someone else to be the leader in their health care journey. Others…

DannySeptember 14, 2014

Advocate Caregiver Consumer ePatient Written Only

What do Caregivers need to manage health?

What do caregivers want from Health Information Technology (HIT)? Most caregivers, people at the center…

DannyJuly 7, 2014

Advocate ePatient Leader Written Only

Defining Patient and Family Engagement – Threads in the Fabric

I take part in many forums that use the term patient engagement. Most often it means…

DannyMarch 30, 2014

Advocate Caregiver Consumer Informaticist Written Only

Kissing the Boo Boo

Health care is a tower of Babel. It's the rare person who can translate across…

DannyMarch 9, 2014

Caregiver Consumer Leader Musician Written Only

Authority and confidence does NOT equal right

I play saxophone in a combo - I'm the only horn. I come in with…

DannyFebruary 23, 2014