end-of-life

Advocate Caregiver Clinician ePatient Family man Leader Musician Written Only

Giving Thanks

I'm thankful for the superpower that I shared with my mother, Ruth, and son, Mike…

DannyNovember 27, 2016

Advocate Caregiver Clinician ePatient Family man Leader Written Only

I Wasn’t Born with a Tattoo, Telling Me How Long I Have to Live

10p New Year's night 2002: Mike called me. I'm numb on my right side. My…

DannyOctober 19, 2016

Advocate Caregiver ePatient Family man Written Only

Pocket Therapy for #Caregivers

My mom insisted on end-of-life care at home. At the same time she worried about…

DannySeptember 25, 2016

Advocate Caregiver Consumer ePatient Leader Written Only

Leadership – The Gift That Keeps on Giving

I felt so empowered by the best boss ever, Jim Bulger, Executive Director of a…

DannyJune 26, 2016

Advocate Clinician ePatient Researcher Written Only

AACH: Communication and Relationships

I attended the American Academy of Communication in Healthcare Conference in New Haven. The AACH…

DannyJune 19, 2016

Advocate Caregiver Family man Researcher Written Only

A caregiver is [not] a caregiver, is [not] a caregiver

When my mother was dying I was a long distance caregiver. My mom made her…

DannyApril 10, 2016

Advocate Caregiver Clinician Consumer ePatient Informaticist Written Only

How many words for pain?

There are 46 words for snow in Iceland. How many are there for physical pain…

DannyMarch 27, 2016

Caregiver Clinician Consumer ePatient Family man Leader Musician Written Only

Last Post, New Year

Last post of 2015. Reviewing the year in 51 blog posts, we discussed: Death and…

DannyDecember 28, 2015

Advocate Caregiver Consumer ePatient Family man Leader Written Only

What’s the Problem with the Experience of People at the Center of Care?

Wearing my many hats: e-patient, caregiver, nurse, informaticist, and leader, I am blessed with mostly…

DannyNovember 15, 2015

Caregiver Clinician ePatient Family man Written Only

Another threshold

My long-time friend, Glen, died last week. The first thing Glen and I did together…

DannyNovember 3, 2015