ePatient

Advocate Caregiver Consumer ePatient Written Only

Labels – DisLabels

I'm disabled. Iidentifyashaving a disability. Someone else says I'm disabled. Do Ihave a disability? I'm…

DannyJanuary 11, 2015

Advocate Caregiver Consumer ePatient Family man Written Only

Who’s your health co-pilot?

As an e-patient advocate, I passionately believe in each of us being the pilot for…

DannyJanuary 4, 2015

Caregiver ePatient Family man Written Only

Shrinking world, shrinking control.

Shrinking world, shrinking control. As my mom progresses through this ending period of her health…

DannyDecember 7, 2014

Caregiver ePatient Family man Written Only

Journey’s end – Goodbyes

My mom is saying goodbye. Goodbye to family, friends, and now peripheral health team members.…

DannyNovember 24, 2014

Caregiver Clinician ePatient Family man Written Only

Tension between rights and safety

My mom is failing - pancreatic cancer. I'm struggling with the balance between her desires…

DannyNovember 16, 2014

Caregiver Clinician Consumer ePatient Family man Informaticist Written Only

Fear on the Health Journey

Fear - an unwelcome, yet familiar, occasional companion on the health journey. A sinking feeling…

DannyNovember 9, 2014

Caregiver Clinician Consumer ePatient Written Only

Comedy Improv and the Health Journey

I've written before about music improv and the health journey. Today I'm inspired by Tina…

DannyNovember 2, 2014

Caregiver Clinician Consumer ePatient Leader Written Only

Journaling – Experimenting

Journaling came up several times this week. Nurse leaders in a Leadership Academy spoke about…

DannyOctober 26, 2014

Advocate Caregiver Clinician Consumer ePatient Leader Written Only

Advocacy

I went to my primary care doc last week for some blood work. The best…

DannyOctober 19, 2014

Caregiver Consumer ePatient Leader Written Only

Tell me the damn cost up front!!

Did you read the Sunday New York Times' article about the $117,000 surprise medical bill?…

DannySeptember 22, 2014