multiple sclerosis

Advocate Caregiver Clinician ePatient Written Only

Reauthorize PCORI. We Need It!

I care about what works for people on their health journey. How do lay people…

DannyOctober 29, 2017

ePatient Written Only

I am Not My Condition

I'm Disabled. Who labels themselves? Feels like crap. I applied for disability. Needed a psychological…

DannySeptember 17, 2017

Caregiver ePatient Researcher Written Only

Learning What Works

One of my passions in life is Learning What Works for people on their health…

DannySeptember 10, 2017

Caregiver Clinician ePatient Written Only

Plan of Care – So Many Questions

I am on a health journey, trying to meet my health goals with the support of…

DannySeptember 3, 2017

Advocate Caregiver ePatient Written Only

What Keeps You Up at Night?

I'm not a complainer or worrier-at least not often or for long. Comparatively, I have…

DannyJuly 16, 2017

Advocate Caregiver Consumer ePatient Written Only

Service Agreements for Me and My Health Team

I wrote a blog post a couple of weeks ago for the Society of Participatory…

DannyApril 2, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Coalition for Compassionate Care of California

I attended the Coalition for Compassionate Care of California Conference (#CCCC17) in Sacramento this week…

DannyMarch 19, 2017

Caregiver ePatient Family man Written Only

Re-calibrating – Finding Balance

So, I have new MS lesions. I'm weaker, less stamina. A 3-days of IV SoluMedrol…

DannyDecember 29, 2016

Advocate Caregiver ePatient Family man Written Only

#CarePlanning – a Mission From God

My wife and I built a house together - the whole house, everything except drilling…

DannyDecember 5, 2016

Advocate Caregiver Clinician ePatient Family man Leader Musician Written Only

Giving Thanks

I'm thankful for the superpower that I shared with my mother, Ruth, and son, Mike…

DannyNovember 27, 2016