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Patient caregiver activist, Nikki Montgomery, brings voices to healthcare Board of Directors for safety, access, and equity. Orientation, dashboards, mentorship
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Listen to Regina Greer-Smith, pioneer and master of research without fear. Strong women leading research. Engagement, dissemination, implementation.
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Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business. Read More
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I fear our limited capacity to care for each other during COVID-19. It’s not beds or equipment, rather a limit of caring people with expertise. All sorts of expertise. It’s a finite pool that we need to invest in and support for the long term – two weeks, a month, a year. I know many burning out expert healthcare workers ready to throw in the towel. Learn about Project COPE
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Transparent communication in healthcare. Connection, trust, control. Research to practice. Change management. Community organizing. Liz Salmi tells her story about OpenNotes.
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Diversity within diversity. Research informs action. Planting seeds of co-learning & co-production. Doing my own work to address health inequities and racism.
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Engage academia and hospitals with patient family advisors. Not rocket science, not window dressing. Basic stuff, yet a challenge. With James Harrison at UCSF.
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How can we scale patient-caregiver engagement in CDS (Clinical Decision Support)? CDS as learning health systems? Interview with Lacy Fabian at MITRE and Ed Lomotan at AHRQ. CDS Connect a library of medical recommendations made useful for programming into electronic records, apps, and software so patients, caregivers, and clinicians can use them as they make choices together.
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A conversation with Ellen Schultz. How can we best commit to improving what’s vital in our local health care system? Commitment is will, resources, and time. Measuring can’t take more effort than improving. Engage people at the center: patients, clinicians, and the people that support them. Focus on relationships. Measure consistency and sustainability. As in any health effort – exercise weak muscles.
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Capacity for best health ebbs and flows. That’s life. Some call citizen capacity – “patient engagement.” But that’s too weak. Growing and sustaining citizen capacity is citizen power. Our personal and community health depends on it.
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