Patient Expert

Nine family members (4 children) on one scooter One in bucket and one in backpack

Advocate Informaticist Leader Podcasts Researcher

The Last Mile. From the Vial to the Arm.

Where are you and your team on the continuum of engagement and partnership with patient-caregivers?…

Danny van LeeuwenMarch 21, 2021

Advocate Caregiver Podcasts Researcher

Power of People. Pause and Trust.

Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward…

Danny van LeeuwenJanuary 10, 2021

Advocate ePatient Podcasts

Sifting through the Sand: Chronic Pain, Tech, Health Equity

Chronic pain, medical choices, tech, & health equity converge in a free-wheeling conversation with the…

Danny van LeeuwenSeptember 6, 2020

Advocate ePatient Podcasts

More Patient Experts at the Table

Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever…

Danny van LeeuwenOctober 19, 2019

Advocate ePatient Informaticist Podcasts Uncategorized

Stories, Not Noise, for You – the CEO of Your Health

Chat with Jan Oldenburg, a nationally recognized thought leader on personal health engagement focused on…

Danny van LeeuwenAugust 25, 2019

Advocate Caregiver ePatient Podcasts

Raising Me To Be a Good Person

Morgan and Amy Gleason sound like pretty normal daughter and mom growing out of the…

Danny van LeeuwenApril 28, 2019

Advocate ePatient Podcasts

What is Today, Isn’t Necessarily Tomorrow

Amy Gleason is Morgan Gleason's mom. We discussed parenting style, cues for calibrating autonomy, the…

Danny van LeeuwenApril 21, 2019

Advocate ePatient Podcasts

Finding a Style that Works

You're gonna love hearing from Morgan Gleason, already a veteran advocate after making a YouTube…

Danny van LeeuwenApril 14, 2019

Advocate ePatient Informaticist Researcher Written Only

CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?

CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers…

Danny van LeeuwenNovember 11, 2018

Advocate Caregiver Consumer ePatient Written Only

Paying Patient Experts

You've heard the Chief xxx Officer saying, I don't need to listen to patient experts,…

DannyDecember 24, 2017

The Last Mile. From the Vial to the Arm.

Power of People. Pause and Trust.

Sifting through the Sand: Chronic Pain, Tech, Health Equity

More Patient Experts at the Table

Stories, Not Noise, for You – the CEO of Your Health

Raising Me To Be a Good Person

What is Today, Isn’t Necessarily Tomorrow

Finding a Style that Works

CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?

Paying Patient Experts

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