AdvocateCaregiverClinicianePatientPodcastsResearcher Unite to share data for best health Data sharing improves health. But it's difficult and unusual. Not sharing leads to error, wasted…Danny van LeeuwenFebruary 10, 2019
AdvocateePatientPodcasts Young Adults Crossing the Threshold from Pediatric to Adult Healthcare How can we be good hosts to young adults as they cross the threshold from…Danny van LeeuwenDecember 30, 2018
AdvocateePatientInformaticistResearcherWritten Only CMS: Use Patient Experts in Measure Development, but Don’t Pay Them? CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers…Danny van LeeuwenNovember 11, 2018
AdvocateCaregiverClinicianePatientResearcherWritten Only 2018 Healthcare Literacy in Research Conference I attended the tenth annual Healthcare Literacy in Research Conference in DC last week as…Danny van LeeuwenNovember 4, 2018
AdvocateResearcherWritten Only The Culture of Participatory Research My recurring mind loop these days is non-traditional patient, non-traditional patient, non-traditional patient. I heard…Danny van LeeuwenJuly 8, 2018
AdvocateePatientWritten Only Help Me Be Patient-Centered Everywhere I go it's patient-centered this and patient-centered that. What does it even mean?…Danny van LeeuwenJune 17, 2018
AdvocateCaregiverClinicianLeaderResearcherWritten Only Health Hats: Reflecting on 2017 Since I stopped being an employee or a boss two years ago I've written annual…DannyFebruary 4, 2018
AdvocateCaregiverConsumerePatientWritten Only Paying Patient Experts You've heard the Chief xxx Officer saying, I don't need to listen to patient experts,…DannyDecember 24, 2017
CaregiverClinicianConsumerePatientFamily manWritten Only From the Inside Looking Out At the #PCORI2017 Annual Meeting, Alan Alda showed us a simple mirror improv exercise (remember…DannyNovember 5, 2017
AdvocateCaregiverClinicianePatientWritten Only Reauthorize PCORI. We Need It! I care about what works for people on their health journey. How do lay people…DannyOctober 29, 2017