AdvocateePatientInformaticistPodcastsResearcher Feb 28th Rare Disease Day: Zebras and Equity #159 Rare diseases as a health equity group. Rare doesn't mean never. Commonalities & differences.Learning from…Danny van LeeuwenFebruary 27, 2022
AdvocateCaregiverePatientPodcastsResearcher A Zebra, Not a Horse: Rare Patient Voice Rare Patient Voice: Gateway to paid Patient Advocacy. Diagnosis-based experience brokers. Interview with Wes Michael.…Danny van LeeuwenFebruary 16, 2020
ePatientPodcastsResearcher Citizen Participation in Rare Disease Research. It’s Rare. In the United States, a rare disease is defined as a condition that affects fewer…Danny van LeeuwenMarch 3, 2019