Society for Participatory Medicine

Advocate ePatient Informaticist Podcasts Researcher Video

Fear, Shame, Access, Connection -Privacy in Digital Exchange

Fred Trotter on the balancing privacy & connection, the role of AI in societal judgment,…

Danny van LeeuwenJanuary 27, 2024

Casey, bald, black glasses, holding hands

Advocate Caregiver ePatient Family man Podcasts Video

The Mighty Mouth Goes Quiet, Casey Quinlan, Mashup 2021-22

Mid-March,Casey didn’t often sound lucid or humorous. She spun a yarn and offered wisdom sporadically.…

Danny van LeeuwenApril 1, 2023

Advocate Caregiver Clinician ePatient Informaticist Podcasts

Collaborative Notes, Engaged Partners, Fewer Errors

Patients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias…

Danny van LeeuwenJune 12, 2022

Advocate Caregiver Clinician ePatient Leader Podcasts Researcher

Innovation, Local Persistence #144

Innovation is not like switching on a lightbulb for the world. Rather it's local iterative,…

Danny van LeeuwenOctober 3, 2021

Informaticist Podcasts Researcher

Infodemiology. Too much. Not enough.

An overabundance of info makes it difficult to find trusted sources, reliable guidance when needed,…

Danny van LeeuwenAugust 16, 2020

Advocate ePatient Leader Podcasts

A Gift That Keeps Giving

Regina Holliday inspires me. A learning dynamo she takes her skills - painting, connection, spirit,…

Danny van LeeuwenJune 28, 2020

Advocate ePatient Podcasts Researcher

Teachable Spirit. Patient Family Advisors.

Careful what you wish for. Health equity and participatory medicine depend on the widespread meaningful…

Danny van LeeuwenNovember 24, 2019

Advocate ePatient Podcasts

More Patient Experts at the Table

Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever…

Danny van LeeuwenOctober 19, 2019

Advocate ePatient Podcasts

Lead by Example

Wow, four strokes by age 39. Quite a record for a sportswoman. A story about…

Danny van LeeuwenOctober 13, 2019

Advocate Caregiver Clinician ePatient Family man Written Only

Stoking My Fires

Success is feeling like I have too much to do two days a week, not…

Danny van LeeuwenOctober 21, 2018