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Young Adult

May 26 2019
Love0

Living a Happy, Full Life

By Advocate, ePatient, Podcasts

Podcast: Play in new window | Download (Duration: 27:56 — 24.7MB) | Embed

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Fatima Muhammed-Ighile learned to advocate for herself and has begun to advocate for others with Sickle Cell Disease. People who have regular lives and struggles and hopes and dreams also have sickle cell disease and are just trying to live a happy life, a happy full life. That’s all. Welcome to this eighth in a series about Young Adults with Complex Medical Conditions Transitioning from Pediatric to Adult Medical Care.

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Apr 21 2019
Love1

What is Today, Isn’t Necessarily Tomorrow

By Advocate, ePatient, Podcasts

Podcast: Play in new window | Download (Duration: 37:38 — 33.8MB) | Embed

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Amy Gleason is Morgan Gleason’s mom. We discussed parenting style, cues for calibrating autonomy, the importance of parent support groups, managing depression, self-care, and advocacy by transitioning young adults. Welcome to this sixth in a series about Young Adults with Complex Medical Conditions Transitioning from Pediatric to Adult Medical Care.

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Mar 31 2019
Love1

Looking Out for Each Other

By Advocate, ePatient, Podcasts

Podcast: Play in new window | Download (Duration: 37:00 — 26.5MB) | Embed

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Welcome to this fourth in a series about Young Adults with complex medical conditions transitioning from pediatric to adult medical care. This interview with mother and daughter, Alexis and Sara Snyder, exploring their evolving relationship. Transitioning to plans about Sara with Sara. Sara had to know her body well and communicate what she knew. I’m impressed that Sara was pretty clear about what she wasn’t clear about. Sara values her mom’s health and well-being. Read More

Mar 24 2019
Love0

Not one transition. Many.

By Advocate, Caregiver, ePatient

Podcast: Play in new window | Download (Duration: 34:24 — 29.3MB) | Embed

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Alexis Snyder, a parent of a teenager with chronic complex health issues since birth, shares her journey. She speaks about accepting what is, helping her daughter prepare to manage the many transitions in medical care from infancy to adulthood, the challenges of a siloed medical system, and a fear of losing control of her daughter’s health as she let’s go of responsibility. Loving, determined, vulnerable. The third interview in a series on Young Adults with Complex Conditions Transitioning from Pediatric to Adults Medical Care. Read More