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May 21, 2025

Pod People, Participatory Governance during COVID

These families created a pandemic pod with clear rules & shared childcare. While adults navigated anxiety, their kids called it "the best time of their lives." (more…)
Danny van Leeuwen
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MusicianPodcastsTraveler
April 24, 2025

Afro-Cuban Jazz and Helping Hands: Cuba’s Accessible Beat

Who needs Spanish when you've got a saxophone? A music-lover proves that disability access is just another improvisation in Havana's jazz scene. (more…)
Danny van Leeuwen
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April 8, 2025

Make America Jenga Again

This metaphor portrays critical national systems dismantled by dangerous, disconnected actors, suggesting irreversible damage requiring collaborative rebuilding (more…)
Danny van Leeuwen
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AdvocateePatientInformaticistPodcastsResearcher
March 9, 2025

Healthcare AI for Humans: Governance, Research, and Rights

Data scientist Emily Hadley on navigating AI in healthcare, offering practical advice for maintaining patient agency amid algorithmic decision-making. (more…)
Danny van Leeuwen
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February 19, 2025

Navigate Chaos, Adapt Our Voices, Leverage Privilege

A child of Holocaust survivors balances pathological optimism with apocalyptic thinking while seeking meaningful ways to channel advocacy in turbulent times. (more…)
Danny van Leeuwen
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February 9, 2025

The Missing Voice: Bridging Research and Real-World Care

Successfully sharing & acting on research findings depends on active partnerships with the implementers – patients, caregivers, & their clinician partners. (more…)
Danny van Leeuwen
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    As an action catalyst, I learn with people on the journey toward best health (people as patients, caregivers, parents, clinicians, direct care staff, communities, and the people that support them). I wear many hats in healthcare:

    • Person with Multiple Sclerosis
    • Care partner for several family members’ end-of-life journeys
    • Nurse for 45+ years
    • Informaticist
    • Quality Management and Measurement leader
    • C-Suite
    • Husband, Father, Opa, Musician

    I specialize in patient/ caregiver/ clinician/ community partnerships and the intersection between research, technology, and the health journey.

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