AdvocateCaregiverPodcastsUncategorized Three Young Adults. 22 Years.Interview with Jill Woodworth, mother of 4, three with Tuberous Sclerosis, managing the transition from…Danny van LeeuwenMarch 10, 2019
ePatientPodcastsResearcher Citizen Participation in Rare Disease Research. It’s Rare.In the United States, a rare disease is defined as a condition that affects fewer…Danny van LeeuwenMarch 3, 2019
AdvocateConsumerLeaderVideo Get along. Get it done. GovernanceIf your team, organization, the project doesn't seem worth your time or smells fishy, check…Danny van LeeuwenFebruary 24, 2019
AdvocateCaregiverClinicianConsumerePatientFamily manInformaticistLeaderMusicianPodcastsResearcher Special edition for blog subscribers onlyHealth Hats, The Blog is changing. I'm the same 2-legged white man of privilege, living…Danny van LeeuwenFebruary 18, 2019
AdvocateConsumerePatientPodcasts State of Inclusion. Ame Sanders, Equity WarriorIt’s everywhere, it’s everywhere. I can’t help but see almost everything I do in my…Danny van LeeuwenFebruary 17, 2019
AdvocateCaregiverClinicianePatientPodcastsResearcher Unite to share data for best healthData sharing improves health. But it's difficult and unusual. Not sharing leads to error, wasted…Danny van LeeuwenFebruary 10, 2019
CaregiverClinicianePatientFamily manPodcasts Lessons from the Clowns When Going to the Doctor’sWhat can the clowns can teach us as patients and caregivers about relaxing, reading the…Danny van LeeuwenFebruary 3, 2019
CaregiverePatientPodcasts Setting Personal Health GoalsEpisode Summary We’re going somewhere with our best health journey. Destination: Personal health goals. If…Danny van LeeuwenJanuary 27, 2019
AdvocateCaregiverClinicianConsumerePatientLeaderPodcasts Equity: more to achieve the sameDiversity, equality, and equity are not the same. Diversity = the inclusion of differences. Equality…Danny van LeeuwenJanuary 20, 2019
CaregiverFamily manPodcasts Pillow, pills, poop, piss, and painBlood, sweat, tears shared by two. Helping one end and another begin. A disaster that…Danny van LeeuwenJanuary 13, 2019