AdvocateePatientInformaticistResearcherWritten Only CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers…Danny van LeeuwenNovember 11, 2018
AdvocateCaregiverClinicianePatientResearcherWritten Only 2018 Healthcare Literacy in Research ConferenceI attended the tenth annual Healthcare Literacy in Research Conference in DC last week as…Danny van LeeuwenNovember 4, 2018
AdvocateCaregiverClinicianePatientInformaticistLeaderResearcherWritten Only Pain Management Choices: One Person’s Point-of-ViewPain and choices mix, but not too well. A sudden new pain requires professional attention…Danny van LeeuwenOctober 28, 2018
AdvocateCaregiverClinicianePatientFamily manWritten Only Stoking My FiresSuccess is feeling like I have too much to do two days a week, not…Danny van LeeuwenOctober 21, 2018
ePatientResearcherUncategorizedWritten Only Medical Marijuana – A Strange Trip IndeedI received my medical marijuana card from the Massachusetts Department of Health a couple of…Danny van LeeuwenOctober 14, 2018
AdvocateCaregiverClinicianePatientInformaticistResearcherUncategorizedWritten Only Putting Patients at the Center of Pain Management DecisionsClinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS)…Danny van LeeuwenOctober 7, 2018
ePatientWritten Only MS: My Door to Peak PerformanceIt's been a strange week post-infusion. The infusion wore me down. My pathological optimism took…Danny van LeeuwenSeptember 30, 2018
AdvocateFamily manLeaderWritten Only Power, Fear, Lack of EmpathyPhoto of Ruth and Ruben van Leeuwen circa 1947 I was riding my trike this…Danny van LeeuwenSeptember 23, 2018
AdvocateCaregiverClinicianePatientLeaderResearcherWritten Only Patient Engagement – Careful What You Wish ForI'm often asked about my take on patient engagement. These buzzwords are losing their meaning.…Danny van LeeuwenSeptember 16, 2018
AdvocateWritten Only Advocacy PearlsSomeone asked me for my pearls of wisdom from my journey as a patient/caregiver activist.…Danny van LeeuwenSeptember 9, 2018