Danny van Leeuwen

Advocate Caregiver Clinician ePatient Family man Written Only

Stoking My Fires

Success is feeling like I have too much to do two days a week, not…

Danny van LeeuwenOctober 21, 2018

ePatient Researcher Uncategorized Written Only

Medical Marijuana – A Strange Trip Indeed

I received my medical marijuana card from the Massachusetts Department of Health a couple of…

Danny van LeeuwenOctober 14, 2018

Advocate Caregiver Clinician ePatient Informaticist Researcher Uncategorized Written Only

Putting Patients at the Center of Pain Management Decisions

Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS)…

Danny van LeeuwenOctober 7, 2018

ePatient Written Only

MS: My Door to Peak Performance

It's been a strange week post-infusion. The infusion wore me down. My pathological optimism took…

Danny van LeeuwenSeptember 30, 2018

Advocate Family man Leader Written Only

Power, Fear, Lack of Empathy

Photo of Ruth and Ruben van Leeuwen circa 1947 I was riding my trike this…

Danny van LeeuwenSeptember 23, 2018

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Patient Engagement – Careful What You Wish For

I'm often asked about my take on patient engagement. These buzzwords are losing their meaning.…

Danny van LeeuwenSeptember 16, 2018

Advocate Written Only

Advocacy Pearls

Someone asked me for my pearls of wisdom from my journey as a patient/caregiver activist.…

Danny van LeeuwenSeptember 9, 2018

Advocate Caregiver Clinician Consumer ePatient Informaticist Researcher Written Only

Managing Pain – A Reality Check

Last month I asked for a reality check from my social networks on behalf of…

Danny van LeeuwenSeptember 2, 2018

ePatient Written Only

More: Journal for Best Health

Julie Holliday, a reader of last week's post, wrote: I found this post very difficult…

Danny van LeeuwenAugust 26, 2018

ePatient Written Only

Journal for Best Health

For me, the work of maintaining best health with a chronic disease takes large parts…

Danny van LeeuwenAugust 19, 2018

Stoking My Fires

Medical Marijuana – A Strange Trip Indeed

Putting Patients at the Center of Pain Management Decisions

MS: My Door to Peak Performance

Power, Fear, Lack of Empathy

Patient Engagement – Careful What You Wish For

Advocacy Pearls

Journal for Best Health

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