Caregiver

Advocate Caregiver ePatient Musician Written Only

Taking a Risk

OMG, I'm upgrading my website. I started the blog almost 5 years ago setting up…

DannyMay 29, 2017

Advocate Caregiver ePatient Informaticist Leader Musician Researcher Written Only

Cinderblocks4 – Medical Advocacy at its Best

Pound for pound, the best health conference! A rare combination of small, local, action-oriented,…

DannyMay 21, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Stories, Scenarios of Care

Screenwriting seems like such an opportunity. The storyteller imagines a dilemma, a journey, a cast…

DannyMay 14, 2017

2-wheeled minivan. Nine family members (4 children) on one scooter. One in bucket and one in backpack

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

The Golden Rule?

Pissed off only begins to describe my reaction to the passage of WealthCare, TrumpCare, RyanCare.…

DannyMay 7, 2017

Advocate Caregiver ePatient Informaticist Researcher Written Only

Precision Prism

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in…

DannyApril 23, 2017

Advocate Caregiver ePatient Researcher Written Only

Misdiagnosis – How can Patients Help Doctors?

The Washington Post reported this week about a study done at the Mayo Clinic where…

DannyApril 9, 2017

Advocate Caregiver Consumer ePatient Written Only

Service Agreements for Me and My Health Team

I wrote a blog post a couple of weeks ago for the Society of Participatory…

DannyApril 2, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Coalition for Compassionate Care of California

I attended the Coalition for Compassionate Care of California Conference (#CCCC17) in Sacramento this week…

DannyMarch 19, 2017

Advocate Caregiver ePatient Family man Written Only

Need a recharge? Listen for what works.

I feel awash with stories (nightmares even) of disastrous, frustrating relationships between people and…

DannyMarch 12, 2017

Advocate Caregiver Consumer ePatient Family man Leader Written Only

Community Rocks

I'm preparing to attend a California Compassionate Care Coalition palliative care conference #cccc17 in a…

DannyMarch 5, 2017