ePatient

Advocate ePatient Leader Written Only

$35 or $30,000 (I think) for a lifesaving drug

Who benefits from the murkiness of finding the prices of prescription drugs? Clearly not patients…

DannyJuly 9, 2017

Advocate Caregiver ePatient Informaticist Written Only

E-Patients, experts with lived experience

This week I connected a patient with expertise in billing with a patient at the…

DannyJuly 2, 2017

Advocate Caregiver Consumer ePatient Leader Written Only

Bad experience? Now what?

I read a post this week on the Society of Participatory Medicine's blog about a…

DannyJune 11, 2017

Caregiver ePatient Informaticist Written Only

Queen for a Day

If I was queen for a day, with a genie, and a clean slate… …

DannyJune 3, 2017

Advocate Caregiver ePatient Musician Written Only

Taking a Risk

OMG, I'm upgrading my website. I started the blog almost 5 years ago setting up…

DannyMay 29, 2017

Advocate Caregiver ePatient Informaticist Leader Musician Researcher Written Only

Cinderblocks4 – Medical Advocacy at its Best

Pound for pound, the best health conference! A rare combination of small, local, action-oriented,…

DannyMay 21, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Stories, Scenarios of Care

Screenwriting seems like such an opportunity. The storyteller imagines a dilemma, a journey, a cast…

DannyMay 14, 2017

2-wheeled minivan. Nine family members (4 children) on one scooter. One in bucket and one in backpack

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

The Golden Rule?

Pissed off only begins to describe my reaction to the passage of WealthCare, TrumpCare, RyanCare.…

DannyMay 7, 2017

Advocate ePatient Leader Written Only

Calling All Advocates – Health Hats Interview

You know I love stories, telling and listening. Especially stories of people on a rough…

DannyApril 30, 2017

Advocate Caregiver ePatient Informaticist Researcher Written Only

Precision Prism

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in…

DannyApril 23, 2017