ePatient

Advocate ePatient Informaticist Leader Researcher Written Only

Resist, Fund Me, Change, Join, Decide, Click, Lead

The pervasive drumbeat of Calls for Action in healthcare overwhelms me, excite me, bewilder…

DannyApril 16, 2017

Advocate Caregiver ePatient Researcher Written Only

Misdiagnosis – How can Patients Help Doctors?

The Washington Post reported this week about a study done at the Mayo Clinic where…

DannyApril 9, 2017

Advocate Caregiver Consumer ePatient Written Only

Service Agreements for Me and My Health Team

I wrote a blog post a couple of weeks ago for the Society of Participatory…

DannyApril 2, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Coalition for Compassionate Care of California

I attended the Coalition for Compassionate Care of California Conference (#CCCC17) in Sacramento this week…

DannyMarch 19, 2017

Advocate Caregiver ePatient Family man Written Only

Need a recharge? Listen for what works.

I feel awash with stories (nightmares even) of disastrous, frustrating relationships between people and…

DannyMarch 12, 2017

Advocate Caregiver Consumer ePatient Family man Leader Written Only

Community Rocks

I'm preparing to attend a California Compassionate Care Coalition palliative care conference #cccc17 in a…

DannyMarch 5, 2017

Advocate Caregiver Clinician ePatient Informaticist Leader Researcher Written Only

Should I or Shouldn’t I? Managing Uncertainty

Have you ever remodeled your kitchen? So many decisions: Cabinet style, drawers, finish, hardware, not…

DannyFebruary 26, 2017

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

Tales of Woe

From my memorable quotes pile: Harried caregiver: What are we supposed to do next? Instructions…

DannyFebruary 19, 2017

Advocate ePatient Family man Leader Written Only

Belonging

“Home is a notion that only nations of the homeless fully appreciate and only the…

DannyFebruary 12, 2017

Advocate Caregiver Clinician Consumer ePatient Family man Uncategorized Written Only

Personal Health Goals

As a person with MS, I've written that my personal health goals are to…

DannyFebruary 6, 2017