ePatient

Advocate ePatient Leader Written Only

Calling All Advocates – Health Hats Interview

You know I love stories, telling and listening. Especially stories of people on a rough…

DannyApril 30, 2017

Advocate Caregiver ePatient Informaticist Researcher Written Only

Precision Prism

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in…

DannyApril 23, 2017

Advocate ePatient Informaticist Leader Researcher Written Only

Resist, Fund Me, Change, Join, Decide, Click, Lead

The pervasive drumbeat of Calls for Action in healthcare overwhelms me, excite me, bewilder…

DannyApril 16, 2017

Advocate Caregiver ePatient Researcher Written Only

Misdiagnosis – How can Patients Help Doctors?

The Washington Post reported this week about a study done at the Mayo Clinic where…

DannyApril 9, 2017

Advocate Caregiver Consumer ePatient Written Only

Service Agreements for Me and My Health Team

I wrote a blog post a couple of weeks ago for the Society of Participatory…

DannyApril 2, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Coalition for Compassionate Care of California

I attended the Coalition for Compassionate Care of California Conference (#CCCC17) in Sacramento this week…

DannyMarch 19, 2017

Advocate Caregiver ePatient Family man Written Only

Need a recharge? Listen for what works.

I feel awash with stories (nightmares even) of disastrous, frustrating relationships between people and…

DannyMarch 12, 2017

Advocate Caregiver Consumer ePatient Family man Leader Written Only

Community Rocks

I'm preparing to attend a California Compassionate Care Coalition palliative care conference #cccc17 in a…

DannyMarch 5, 2017

Advocate Caregiver Clinician ePatient Informaticist Leader Researcher Written Only

Should I or Shouldn’t I? Managing Uncertainty

Have you ever remodeled your kitchen? So many decisions: Cabinet style, drawers, finish, hardware, not…

DannyFebruary 26, 2017

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

Tales of Woe

From my memorable quotes pile: Harried caregiver: What are we supposed to do next? Instructions…

DannyFebruary 19, 2017