ePatient

Advocate Caregiver Consumer ePatient Leader Researcher Written Only

Experiences, experiments, reflection, action

This week people told me stories about a moment in their health journey - Symptoms,…

DannyApril 17, 2016

Advocate Caregiver ePatient Family man Musician Written Only

Engaged with Sax

Shopping for a new neurologist I had three screening questions: What's your response time to…

DannyApril 2, 2016

Advocate Caregiver Clinician Consumer ePatient Informaticist Written Only

How many words for pain?

There are 46 words for snow in Iceland. How many are there for physical pain…

DannyMarch 27, 2016

Advocate Caregiver Clinician ePatient Leader Written Only

Alone, we can do so little. Together, we can do so much

I taught this week at the Organization of Nurse Leaders' Leadership Academy. My topic is…

DannyMarch 20, 2016

Advocate Caregiver Consumer ePatient Informaticist Written Only

Changing habits – for people and payers

I love my health team. They help me stay tuned up with my chronic challenges…

DannyMarch 12, 2016

Advocate Consumer ePatient Family man Written Only

Disabled. Looking for Work. Reference

Here's the reference I didn't accept on LinkedIn: He's seriously annoyed with his disability, full…

DannyMarch 6, 2016

Advocate Caregiver Clinician ePatient Leader Written Only

Life Happens or Expecting the Unexpected

The New York Times Magazine has an article this week about flexibility at work. Since…

DannyFebruary 28, 2016

Advocate Caregiver Clinician Consumer ePatient Informaticist Researcher Written Only

Not collected? Not studied.

What do people consider to be clinical data, when they're not wearing the hat of…

DannyFebruary 21, 2016

Advocate Caregiver Clinician ePatient Family man Informaticist Leader Researcher Written Only

What’s Pokeman Got to Do With It?

I went to a meeting in Chinatown attended by parents with children on the autism…

DannyFebruary 14, 2016

Advocate Caregiver Clinician Consumer ePatient Family man Leader Written Only

#SDM – a floor, not a ceiling

I am a patient, caregiver, and nurse - an advocate of shared decision-making (#SDM). My…

DannyFebruary 7, 2016