ePatient

Advocate Caregiver Clinician ePatient Informaticist Podcasts Researcher Video

The Missing Voice: Bridging Research and Real-World Care

Successfully sharing & acting on research findings depends on active partnerships with the implementers –…

Danny van LeeuwenFebruary 9, 2025

Advocate Caregiver Clinician ePatient Family man Informaticist Podcasts Researcher

Safe Living in an Epidemic

Helping people trying to live safely in COVID world? Listen to people, hear their questions.…

Danny van LeeuwenJuly 19, 2020

Advocate ePatient Podcasts

More Patient Experts at the Table

Patient expert, co-investigator, patient partner, subject matter expert, patient advocate, patient/caregiver activist. Many labels. Whatever…

Danny van LeeuwenOctober 19, 2019

Caregiver Consumer ePatient Written Only

Personal Health Goals Revisited

I'm celebrating that I've finally learned an effective stretch for my hamstrings. Thigh and calf…

DannyAugust 6, 2017

Advocate Caregiver Written Only

Making a difference as circumstances change

I love hearing, That's a great idea! I'll try it. I'm delighted when I say…

DannyJuly 30, 2017

Caregiver ePatient Family man Written Only

Celebrating Connection, Respect, and Help

I crave connection and respect. Not crave as a thirsty man crawling toward a mirage…

DannyJuly 23, 2017

Advocate Caregiver ePatient Written Only

What Keeps You Up at Night?

I'm not a complainer or worrier-at least not often or for long. Comparatively, I have…

DannyJuly 16, 2017

Advocate ePatient Leader Written Only

$35 or $30,000 (I think) for a lifesaving drug

Who benefits from the murkiness of finding the prices of prescription drugs? Clearly not patients…

DannyJuly 9, 2017

Advocate Caregiver ePatient Informaticist Written Only

E-Patients, experts with lived experience

This week I connected a patient with expertise in billing with a patient at the…

DannyJuly 2, 2017

Advocate Caregiver Consumer ePatient Leader Written Only

Bad experience? Now what?

I read a post this week on the Society of Participatory Medicine's blog about a…

DannyJune 11, 2017