Danny van Leeuwen

Advocate ePatient Podcasts

Looking Out for Each Other

Welcome to this fourth in a series about Young Adults with complex medical conditions transitioning…

Danny van LeeuwenMarch 31, 2019

Advocate Caregiver ePatient Podcasts

Not one transition. Many.

Alexis Snyder, a parent of a teenager with chronic complex health issues since birth, shares…

Danny van LeeuwenMarch 24, 2019

ePatient Musician Podcasts

16, Sophomore, All-In

Welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult…

Danny van LeeuwenMarch 17, 2019

Advocate Caregiver Podcasts Uncategorized

Three Young Adults. 22 Years.

Interview with Jill Woodworth, mother of 4, three with Tuberous Sclerosis, managing the transition from…

Danny van LeeuwenMarch 10, 2019

ePatient Podcasts Researcher

Citizen Participation in Rare Disease Research. It’s Rare.

In the United States, a rare disease is defined as a condition that affects fewer…

Danny van LeeuwenMarch 3, 2019

Advocate Consumer Leader Video

Get along. Get it done. Governance

If your team, organization, the project doesn't seem worth your time or smells fishy, check…

Danny van LeeuwenFebruary 24, 2019

Advocate Caregiver Clinician Consumer ePatient Family man Informaticist Leader Musician Podcasts Researcher

Special edition for blog subscribers only

Health Hats, The Blog is changing. I'm the same 2-legged white man of privilege, living…

Danny van LeeuwenFebruary 18, 2019

Advocate Consumer ePatient Podcasts

State of Inclusion. Ame Sanders, Equity Warrior

It’s everywhere, it’s everywhere. I can’t help but see almost everything I do in my…

Danny van LeeuwenFebruary 17, 2019

Advocate Caregiver Clinician ePatient Podcasts Researcher

Unite to share data for best health

Data sharing improves health. But it's difficult and unusual. Not sharing leads to error, wasted…

Danny van LeeuwenFebruary 10, 2019

Caregiver Clinician ePatient Family man Podcasts

Lessons from the Clowns When Going to the Doctor’s

What can the clowns can teach us as patients and caregivers about relaxing, reading the…

Danny van LeeuwenFebruary 3, 2019