Danny van Leeuwen

Advocate ePatient Informaticist Researcher Written Only

CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?

CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers…

Danny van LeeuwenNovember 11, 2018

Advocate Caregiver Clinician ePatient Researcher Written Only

2018 Healthcare Literacy in Research Conference

I attended the tenth annual Healthcare Literacy in Research Conference in DC last week as…

Danny van LeeuwenNovember 4, 2018

Advocate Caregiver Clinician ePatient Informaticist Leader Researcher Written Only

Pain Management Choices: One Person’s Point-of-View

Pain and choices mix, but not too well. A sudden new pain requires professional attention…

Danny van LeeuwenOctober 28, 2018

Advocate Caregiver Clinician ePatient Family man Written Only

Stoking My Fires

Success is feeling like I have too much to do two days a week, not…

Danny van LeeuwenOctober 21, 2018

ePatient Researcher Uncategorized Written Only

Medical Marijuana – A Strange Trip Indeed

I received my medical marijuana card from the Massachusetts Department of Health a couple of…

Danny van LeeuwenOctober 14, 2018

Advocate Caregiver Clinician ePatient Informaticist Researcher Uncategorized Written Only

Putting Patients at the Center of Pain Management Decisions

Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS)…

Danny van LeeuwenOctober 7, 2018

ePatient Written Only

MS: My Door to Peak Performance

It's been a strange week post-infusion. The infusion wore me down. My pathological optimism took…

Danny van LeeuwenSeptember 30, 2018

Advocate Family man Leader Written Only

Power, Fear, Lack of Empathy

Photo of Ruth and Ruben van Leeuwen circa 1947 I was riding my trike this…

Danny van LeeuwenSeptember 23, 2018

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Patient Engagement – Careful What You Wish For

I'm often asked about my take on patient engagement. These buzzwords are losing their meaning.…

Danny van LeeuwenSeptember 16, 2018

Advocate Written Only

Advocacy Pearls

Someone asked me for my pearls of wisdom from my journey as a patient/caregiver activist.…

Danny van LeeuwenSeptember 9, 2018