AdvocateCaregiverePatientWritten Only Byzantine Access to My Health Data Serves Whom? Not Me I have secondary progressive multiple sclerosis. Today, I have a primary care physician in one…DannyAugust 19, 2017
AdvocateCaregiverePatientWritten Only The Personal Health Journey The metaphor, Personal Health Journey, works for me. We're heading somewhere for health whether on…DannyAugust 13, 2017
AdvocateCaregiverWritten Only Making a difference as circumstances change I love hearing, That's a great idea! I'll try it. I'm delighted when I say…DannyJuly 30, 2017
AdvocateCaregiverePatientWritten Only What Keeps You Up at Night? I'm not a complainer or worrier-at least not often or for long. Comparatively, I have…DannyJuly 16, 2017
AdvocateePatientLeaderWritten Only $35 or $30,000 (I think) for a lifesaving drug Who benefits from the murkiness of finding the prices of prescription drugs? Clearly not patients…DannyJuly 9, 2017
AdvocateCaregiverePatientInformaticistWritten Only E-Patients, experts with lived experience This week I connected a patient with expertise in billing with a patient at the…DannyJuly 2, 2017
AdvocateFamily manWritten Only 100th Birthday We celebrated a 100th birthday around my Aunt Kikke, born during WWI in the Netherlands.…DannyJune 25, 2017
AdvocateCaregiverConsumerePatientLeaderWritten Only Bad experience? Now what? I read a post this week on the Society of Participatory Medicine's blog about a…DannyJune 11, 2017
AdvocateCaregiverePatientMusicianWritten Only Taking a Risk OMG, I'm upgrading my website. I started the blog almost 5 years ago setting up…DannyMay 29, 2017
AdvocateCaregiverePatientInformaticistLeaderMusicianResearcherWritten Only Cinderblocks4 – Medical Advocacy at its Best Pound for pound, the best health conference! A rare combination of small, local, action-oriented,…DannyMay 21, 2017