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Adapting – Balance AdvocateCaregiverConsumerePatientFamily manLeaderWritten Only

Adapting – Balance

When diagnosed 7 years ago with Multiple Sclerosis, my neurologist told me I'd had MS…
Danny
DannyOctober 11, 2015
Gratitude AdvocateClinicianePatientFamily manLeaderWritten Only

Gratitude

Silent gratitude isn't much use to anyone. ~ GB Stern It can be tough to…
Danny
DannyOctober 4, 2015
The jumble of research AdvocateCaregiverClinicianConsumerePatientResearcherWritten Only

The jumble of research

Next week, I'll be attending PCORI's (Patient Centered Outcomes Research Institute) Communication and Dissemination Advisory…
Danny
DannySeptember 27, 2015
Belonging – a matter of perception CaregiverConsumerePatientFamily manWritten Only

Belonging – a matter of perception

During the inevitable ups and downs of life, I feel better when I belong. The…
Danny
DannySeptember 21, 2015
Finite disappointment, infinite hope CaregiverePatientFamily manLeaderWritten Only

Finite disappointment, infinite hope

“We must accept finite disappointment, but never lose infinite hope.”― Martin Luther King, Jr. Mutual disappointment…
Danny
DannySeptember 13, 2015
Finally, narratives at the end CaregiverFamily manWritten Only

Finally, narratives at the end

Spread the rest of Mom's ashes with my Dad's in Grosse Pointe, MI, joined by…
Danny
DannySeptember 7, 2015
Embracing your friend, ignorance CaregiverClinicianePatientFamily manLeaderWritten Only

Embracing your friend, ignorance

Pondering ignorance this week. Not so much the ignorance we see with politicians (although that…
Danny
DannyAugust 30, 2015
Push, push AdvocateCaregiverClinicianConsumerePatientFamily manLeaderWritten Only

Push, push

My wife waits to tell me about something she wants us to do or buy,…
Danny
DannyAugust 23, 2015
Notifying me when accessing my health data AdvocateePatientInformaticistLeaderWritten Only

Notifying me when accessing my health data

Why don't I know when someone, something, anyone accesses my personal health data? I get…
Danny
DannyAugust 16, 2015
Nothing about me, Without me. AdvocateCaregiverConsumerePatientInformaticistLeaderWritten Only

Nothing about me, Without me.

More about the work of the group OpenID HEART (Health Relationship Trust) that I blogged…
Danny
DannyAugust 9, 2015
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  • Podcast
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    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
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Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact