AdvocateCaregiverConsumerePatientWritten Only Labels – DisLabels I'm disabled. Â Iidentifyashaving a disability. Â Someone else says I'm disabled. Do Ihave a disability? I'm…DannyJanuary 11, 2015
AdvocateCaregiverConsumerePatientFamily manWritten Only Who’s your health co-pilot? As an e-patient advocate, I passionately believe in each of us being the pilot for…DannyJanuary 4, 2015
CaregiverePatientFamily manWritten Only Closing the loop – the last P – Parting Closing the loop with grief. The P's of dying pile up - the first six…DannyDecember 28, 2014
CaregiverClinicianConsumerePatientFamily manWritten Only The end – not alone Journey's end - team effort - for ender, family and family caregivers. This post is…DannyDecember 22, 2014
CaregiverClinicianePatientFamily manWritten Only Last days – a bittersweet journey She's walking on a people mover. You know, the moving sidewalk in an airport. My…DannyDecember 14, 2014
CaregiverePatientFamily manWritten Only Shrinking world, shrinking control. Shrinking world, shrinking control. As my mom progresses through this ending period of her health…DannyDecember 7, 2014
CaregiverePatientFamily manWritten Only Humor in a Once in a Lifetime Experience Today my mother said this was a once in a lifetime experience. Ha. What a…DannyNovember 29, 2014
CaregiverePatientFamily manWritten Only Journey’s end – Goodbyes My mom is saying goodbye. Goodbye to family, friends, and now peripheral health team members.…DannyNovember 24, 2014
CaregiverClinicianePatientFamily manWritten Only Tension between rights and safety My mom is failing - pancreatic cancer. I'm struggling with the balance between her desires…DannyNovember 16, 2014
CaregiverClinicianConsumerePatientFamily manInformaticistWritten Only Fear on the Health Journey Fear - an unwelcome, yet familiar, occasional companion on the health journey. A sinking feeling…DannyNovember 9, 2014