Danny van Leeuwen, aka Health Hats, patient-caregiver activist, talks about governance
Putting Patients and Clinicians at the Center of CDS Development and Implementation
Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS) technology can maximize trust and engagement during informed decision-making if used to its full potential. Or NOT. Consider the patient and family perspective in making choices about pain management and opioid use CDS.
Managing the Heat
MS-SUPPORT Decision Aid Promotes Collaborative Decision-Making and Treatment Adherence for Multiple Sclerosis
Give Me My DaM Data::The Revolution
CMS Technical Expert Panel Summary January 2018
Boosting Patient Engagement in a Value-Based World
Supporting Family Caregivers
WEGO Health Solutions: Value Patient Caregiver Experts
WEGO Health and Health Hats: Mutual benefits
Interview on #PatientOrator with Kistein Monkhouse
Patient Activism as Patient and Clinician
Communication at Transitions: One Audacious Bite at a Time
Poor communication at transitions impacts each of the Quadruple Aims.
The Family Caregiver Connection: Supporting Essential Care Partners as Patients to Home
National Caregiving Conference, November 2017, with Geri Lynn Baumblatt, Mary Anne Sterling, Cathi Crookston, and Danny van Leeuwen
What Your Patient Thinks – Learning Together
The neurologist surprised me. He said, “I’m an expert in medical treatment for populations with multiple sclerosis, but I don’t know a thing about you. My job is to learn about you, and your job is to teach me about you. You are an experiment of one. Let’s travel on this journey together.”
The Personal Health Journey
The metaphor, Personal Health Journey, works for me. We’re heading somewhere for health whether on purpose or not.
Informed Decision Making SPM Conference 2017
Knowledge, Heart, Courage: Looking for the Yellow Brick Road to Shared Decision-Making. Patient, physician, researcher, and creator.
Health Partner or Care Partner?
Navigating the health journey is complex, treacherous, and emotional. Few can successfully navigate alone. A post for the Society for Participatory Medicine blog.
The right information about the right person or group of people at the right time in the right manner for the right viewer. Hence, Precision Prism.
The Guidebook for Peer Respite Self-Evaluation
Peer respites: psychiatric emergency services can be avoided if less coercive or intrusive supports are available in the community.
Service Agreements Among Friends and Colleagues
Service agreements set boundaries and accountabilities, which can be especially important for someone who’s managing a chronic condition.
Person-Centered #CarePlanning-What data?
I have goals and a plan. I monitor and communicate it. I’m the connector for my team of more than a dozen. This is person-centered #CarePlanning.
Communicate What? #CarePlanning
What are the goals of the person on the health journey? Who’s going to do stuff? When? How will these be tracked and shared across time and settings?
OpenID HEART: Sharing our data gives patients power
Empowered patients – e-patients – desire the ability to gather, share, and control their health data. (Gimme My DaM Data!)
“Sister” Organization! ACH: Academy of Communication in Healthcare
ACH is the professional home for all committed to improving communication and relationships in healthcare.
On Performance Improvement and Organizational Recovery
Many similarities between organization performance improvement and personal recovery from addiction
Engaged with Sax
When working with patients, identifying a passion or goal can serve as a destination or barometer to drive that person to wellness.
You Do Great Work, We Can Help
Organizational Culture. Change from Within. Know yourself. See the culture. Be a change agent / catalyst. Have fun
Bring a Companion to Your Next Doctor’s Appointment
Should you bring someone with you to your next doctor's appointment? If you're asking, the answer is yes. If you're asked, how do you be the best companion?
Clinicians are from Mars, ePatients are from Venus
ePatients and clinicians agree- they seek
Book Review: Far from the Tree
I recommend the book if you have a strong constitution, and are willing to have your fundamental views and values be shaken and challenged.
Family Caregivers on the Front Lines through HIT
Include family caregivers in the conversation. Family caregivers become your most effective care delivery resource when you LET them.
Self-knowledge, Strategic Vision, Interpersonal and Communication Effectiveness, Inspire and Lead Change, Take Risks and Be Creative.
Book Review: e-Patients Live Longer
Addresses communication among the health care team (ePatients and their caregivers), safety, information gathering, privacy, cost, and health care’s future.
Improving Behavioral Health Satisfaction Assessment: Measuring Patients’ Perceptions
Transition to behavior-based questions giving clear targets for program goals and initiatives
Do No Harm
Complex systems tend to obscure the epidemiology of errors and then tends to slow implementation of practice to reduce them.
Business Role of Healthcare Quality Professionals
Role includes all facets of transforming the patient, physician, and staff experience. Consultant, coach, analyst
Accessing Our Health Data
Data informs quality of health needed for quality of life. We need the right info about the right person at the right time in the right manner.
93,000,000 Caregivers as Partners
Technology could help family caregivers face significant challenges. Few tools are designed specifically for caregivers.
Marrying Workflow and Life Flow: A Patient and Clinician Story
Communities get together to solve a problem, technology helps to scale the solutions. What comes first?…
Building a Team and Getting What You Need: Interview
Personal health goals, team building, navigators, peers with lived experience, take someone with you.
Setting Personal Health Goals
My personal health goal: progress as slowly as possible and operate at my peak capacity.
Calling All Advocates – Health Hats Interview
Advocacy and community organizing is a tough business. Passion and lived experience are necessary, but not sufficient. Lessons learned from an expert.
I Wasn’t Born with a Tattoo Telling Me How Long I Had to Live
Mike died on November 18th, 2002. But while he lived, Mike was willing to try anything, but his quality of life came first.
Lived Experience + Expertise = Value
People with lived experience should be paid for their expertise. Pay me for my skill. I should pay for others’ skill helping me manage.
Learning Together: What Your Patients Think
After a diagnosis of multiple sclerosis, Danny van Leeuwen describes his relationship with his neurologist
Medication Error Rates
Good pharmacy practice should be reflected in lower error rates, but an 'honesty tax' for thorough error reporting may be reflected in higher error rates.