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Advocate Caregiver ePatient Written Only

Byzantine Access to My Health Data Serves Whom? Not Me

I have secondary progressive multiple sclerosis. Today, I have a primary care physician in one…

DannyAugust 19, 2017

Advocate Caregiver ePatient Written Only

The Personal Health Journey

The metaphor, Personal Health Journey, works for me. We're heading somewhere for health whether on…

DannyAugust 13, 2017

Caregiver ePatient Family man Written Only

Celebrating Connection, Respect, and Help

I crave connection and respect. Not crave as a thirsty man crawling toward a mirage…

DannyJuly 23, 2017

Advocate Caregiver ePatient Written Only

What Keeps You Up at Night?

I'm not a complainer or worrier-at least not often or for long. Comparatively, I have…

DannyJuly 16, 2017

Advocate Family man Written Only

100th Birthday

We celebrated a 100th birthday around my Aunt Kikke, born during WWI in the Netherlands.…

DannyJune 25, 2017

Advocate Caregiver Consumer ePatient Leader Written Only

Bad experience? Now what?

I read a post this week on the Society of Participatory Medicine's blog about a…

DannyJune 11, 2017

Advocate Caregiver ePatient Informaticist Leader Musician Researcher Written Only

Cinderblocks4 – Medical Advocacy at its Best

Pound for pound, the best health conference! A rare combination of small, local, action-oriented,…

DannyMay 21, 2017

Advocate Caregiver Clinician ePatient Leader Researcher Written Only

Stories, Scenarios of Care

Screenwriting seems like such an opportunity. The storyteller imagines a dilemma, a journey, a cast…

DannyMay 14, 2017

Advocate Caregiver ePatient Informaticist Researcher Written Only

Precision Prism

I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in…

DannyApril 23, 2017

Advocate ePatient Informaticist Leader Researcher Written Only

Resist, Fund Me, Change, Join, Decide, Click, Lead

The pervasive drumbeat of Calls for Action in healthcare overwhelms me, excite me, bewilder…

DannyApril 16, 2017

Byzantine Access to My Health Data Serves Whom? Not Me

The Personal Health Journey

Celebrating Connection, Respect, and Help

What Keeps You Up at Night?

100th Birthday

Bad experience? Now what?

Cinderblocks4 – Medical Advocacy at its Best

Stories, Scenarios of Care

Precision Prism

Resist, Fund Me, Change, Join, Decide, Click, Lead

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