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Turn-around. Interview of Health Hats by Craig Constantine entitled, Rich, about my podcasting process. A ton of work to keep it fresh. Ruthless editing.
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I’m not the sharpest knife in the musician drawer. Disheartening. I wish I were better. If wishes made me play better… All I can do? Keep at it. In the last two years. I’ve gone from “I can’t do this, I’m quitting” to “I need to be better.” One foot in front of the other. If this were health, I’d advise that you never get better in a straight line- always many dips and rises. No dip, no rise. I do like the rise. Gotta live with the dips.
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Abilities changing. Can’t play my horn. Acute pain on top of chronic pain. Need new solutions. Right-sizing virtual and in-person visits. Maintain optimism.
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Approaching my health as improv. Some stuff work at the moment; some don’t. Listen, learn, appreciate. There are no mistakes. We are where we are, trying again. Read More
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Survival mode in a bubble of privilege until called to more radical action. 15-minute advantage, active listening, sharing control, critical thinking, and music Read More
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Gabrielle Pitman, singer-songwriter, Musicians Can Thrive podcaster, lives between the notes while advocating for people in the music life during these Covid-19 days.
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Chat with Sara Lorraine Snyder: ‘As a person living with a disability, we’re already used to the world being able to hurt us or bring us down, whether from other people judging or saying things or your body being funky and doing not behaving in an optimal way. Just knowing that now there’s something, especially for people like me living with lung conditions and whatnot that there’s something that can very well take us out if it so pleased.’
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Darlene Harrier talks about physical therapy for those with neurodegenerative disorders like MS and Parkinson’s: intermittent, life-long care.
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Sometimes I wish I had fallen in love with the flute. It would be easier than carrying the 40-pound sax up and downstairs. But it motivates me to keep doing my squats and increasing upper body strength as my lower body function diminishes. So, engaging with sax is perfect for me. Using different parts of my brain, learning every day, keeping me humble, and spiritually strong. Are you still playing the baritone sax? is a spot-on personal health outcome for me. So merry holidays everyone. I hope you have a musical season
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Welcome to the Health Hats podcast series about young adults transitioning from pediatric to adult medical care. In this series, I interview young adults with complex medical conditions, their parent or guardians, point-of-care clinicians caring for these young adults, and whoever else I find of interest in this fascinating, frustrating, heart-breaking, and inspiring world.
This second podcast of the series is with Sara Lorraine Snyder, a fine, eloquent, young woman who has lived her entire life with chronic medical issues. She’s learning to drive her own healthcare and manage the transition to adult medical care.
“If you were playing with the team for football or whatever and then they come you come in the next practice and half of your team is completely new people that you don’t even know and then you don’t know how to effectively work with that team so that in the end of the day you can win or like achieve, whatever you need to.” Sara Lorraine Snyder
