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wheelchair

Days 6-12 Camino de Santiago. Rejuvenated, inspired, not yet peaked

By ePatient, Family man, Podcasts

I just can’t believe how much I’m enjoying just listening to the birds and listening to the wind.  It quiets my mind. I know you’re shocked to know but I have a very active mind. It just never stops, which works some of the time, if not most of the time.  But it’s nice to quiet it and just listen. Buen Camino

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Camino de Santiago. Pilgrimage of sounds.

By Advocate, ePatient, Family man, Podcasts

I find myself on a pilgrimage. I thought I was tagging along with my wife’s hiking group through rural, Northern Spain as a disabled person. But instead, I find myself on a pilgrimage. A pilgrimage of sounds. Buen Camino

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Sound and noise. Senses and voice.

By Advocate, ePatient, Podcasts

Hey there, glad you could join me. I’d like to pause and take stock of the past six months and look a bit to the future. We’re in the middle of a series with Young Adults with Complex Conditions Transitioning from Pediatric to Adult Medical Care. I’ve published 7 episodes in this series. I’m taking a brief break on the series and traveling to Spain. While we’re here together I’ll look back at the series, talk about Spain, and reflect on my patient/caregiver activism journey. Read More

Helping Hands Everywhere

By ePatient

I took my foldable electric wheelchair solo on my trip to Philadelphia this week. My last solo wheelchair experience was in New York City in 1977 when I took a course at NYU’s Rusk Institute of Physical Rehabilitation. On the second day of the two-week course, I spent the whole day in a wheelchair by myself.  It was terrifying. I got stuck in a pothole crossing Fifth Avenue during rush hour.  The ground rules were, never get out of the chair. A homeless woman ran over and pushed me across before I got run over by the honking yellow cabs. On Tuesday, in Philly, I got stuck again in a small sidewalk pothole and a man, sitting on the curb with an “I’m homeless” sign came over and pushed me out. I saw him again on my way back from the restaurant. I handed him $10 and thanked him for helping me. He wouldn’t take it, I was just helping you out. I thanked him again and told him, you helped me and now I’m helping you. He took it. Read More

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