multiple sclerosis

Advocate Caregiver Consumer ePatient Written Only

Labels – DisLabels

I'm disabled. Iidentifyashaving a disability. Someone else says I'm disabled. Do Ihave a disability? I'm…

DannyJanuary 11, 2015

Consumer ePatient Written Only

Grace

This week I'm experiencing a melding of grief and grace. Grief: My multiple sclerosis is…

DannyMay 25, 2014

Caregiver ePatient Written Only

Test driving – Still shopping

I test drove a new neurologist this week. I'm still shopping. Two factors affected my…

DannyNovember 3, 2013

Clinician Consumer ePatient Written Only

Finding a New Doctor, Oh My! Part 1

My neurologist has moved away. I'm grieving. Granted he was a curmudgeon with mixed bedside…

DannySeptember 29, 2013

ePatient Written Only

Things That Go Bump in the Night

From goulies and ghosties and long-leggedy beasties And things that go bump in the night…

DannySeptember 22, 2013

ePatient Musician Written Only

Start with the end in mind

How do we start a journey? We decide we're going to work, home, to Boston,…

DannyJuly 28, 2013

ePatient Written Only

Disabled

Started a new job - first day - a form asked if I was disabled…

DannyMay 1, 2013

Advocate Caregiver Consumer Leader Written Only

Trust- Another Magic Lever

Recently, Joan Vitello, Associate Chief Nurse at Brigham and Women's Hospital, inspired me talking about…

DannyApril 20, 2013

Advocate Caregiver ePatient Family man Written Only

Clinicians are from Mars, e-Patients are from Venus

Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can…

DannyApril 10, 2013

Caregiver ePatient Family man Written Only

It’s a Caregiver Xmas

I started crying today. My wife reminded me to rinse my mouth with salt water.…

DannyDecember 24, 2012