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A Third on the Shelf: Rethinking Power in Community Research AdvocateePatientPodcastsResearcherVideo

A Third on the Shelf: Rethinking Power in Community Research

Kirk & Lacy on shifting research funding away from federal grants: what happens to community…
Danny van Leeuwen
Danny van LeeuwenNovember 23, 2025
Give Me My Damn Data. Then What? Managing Permissions. AdvocateConsumerePatientInformaticistPodcastsResearcherVideo

Give Me My Damn Data. Then What? Managing Permissions.

Your health data belongs to you—but how can you share it safely? Fabienne Bourgeois, MD,…
Danny van Leeuwen
Danny van LeeuwenNovember 2, 2025
Catch-22.0: AI Creates Problems It Solves AdvocateConsumerInformaticistPodcastsResearcherVideo

Catch-22.0: AI Creates Problems It Solves

Healthcare AI isn't a tech problem—it's a mirror reflecting how our health system already fails.…
Danny van Leeuwen
Danny van LeeuwenOctober 6, 2025
Letter: Trust Me, I’m Skeptical AdvocateePatientLeaderPodcastsVideo

Letter: Trust Me, I’m Skeptical

Letters beat emails for trustworthiness. A gullible skeptic reflects on navigating trust in a 50-year…
Danny van Leeuwen
Danny van LeeuwenSeptember 7, 2025
Listen First, Lead Together: Advocacy and Power Dynamics AdvocateConsumerLeaderPodcastsVideo

Listen First, Lead Together: Advocacy and Power Dynamics

Ronda Alexander on strategies to build inclusive health coalitions, manage power dynamics, center marginalized voices,…
Danny van Leeuwen
Danny van LeeuwenAugust 10, 2025
Never leave your shit on someone else’s farm! AdvocateLeaderPodcastsVideo

Never leave your shit on someone else’s farm!

Exploring bird flu prevention with farm owner Shannon Hayes. Discover boot washing, flock protection with…
Danny van Leeuwen
Danny van LeeuwenJuly 19, 2025
First We Listen, Then We Act. Informatics in Decision-Making AdvocateClinicianInformaticistLeaderPodcastsVideo

First We Listen, Then We Act. Informatics in Decision-Making

MS patient turned healthcare disruptor shares why your biggest "problem users" are actually your most…
Danny van Leeuwen
Danny van LeeuwenJune 21, 2025
Pod People, Participatory Governance during COVID CaregiverFamily manPodcastsVideo

Pod People, Participatory Governance during COVID

These families created a pandemic pod with clear rules & shared childcare. While adults navigated…
Danny van Leeuwen
Danny van LeeuwenMay 21, 2025
Afro-Cuban Jazz and Helping Hands: Cuba’s Accessible Beat MusicianPodcastsTraveler

Afro-Cuban Jazz and Helping Hands: Cuba’s Accessible Beat

Who needs Spanish when you've got a saxophone? A music-lover proves that disability access is…
Danny van Leeuwen
Danny van LeeuwenApril 24, 2025
Make America Jenga Again AdvocateConsumerePatientFamily manResearcherVideo

Make America Jenga Again

This metaphor portrays critical national systems dismantled by dangerous, disconnected actors, suggesting irreversible damage requiring…
Danny van Leeuwen
Danny van LeeuwenApril 8, 2025
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    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
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    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
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Danny van Leeuwen - Learn with people on the journey toward best health
  • Podcast
  • Topics
    • Patient Engagement
    • CDS: Choices About Your Health
    • Caregiving
    • Adaptive Travel
    • Covid-19
    • Chronic Pain Management
    • Transitioning from Pediatric to Adult Medical Care
    • Interviews of Danny
    • Family Caregivers: Hospital to Home
  • YouTube Channel
  • Support
  • Explore
  • Contact