Skip to main content

Foreboding and Morbid Curiosity

By November 14, 2024November 15th, 2024Advocate, ePatient, Family man, Leader, Musician, Podcasts, Video
Man in top hat and colorful mask
Spread the love

Reflecting on community & self-care post-election. MS teaches patience. Adjusting media habits, finding strength in family history, music, & trusted connections.

Summary

Health Hats muses about physical, mental, and spiritual health, community connections, and self-care during these post-election times. He has changed his media consumption habits and is learning from his experiences with multiple sclerosis. He expresses anxiety and a dark curiosity about the future, drawing strength from family history, marriage, and music, and emphasizes the importance of staying connected with trusted communities and being open to help when needed.

Click here to view the printable newsletter with images. More readable than a transcript, which can also be found below.

Please comment and ask questions:

Production Team

  1. Kayla Nelson: Web and Social Media Coach, Dissemination, Help Desk 
  2. Leon van Leeuwen: article-grade transcript editing 
  3. Oscar van Leeuwen: video editing
  4. Julia Higgins: Digital marketing therapy
  5. Steve Heatherington: Help Desk and podcast production counseling
  6. Joey van Leeuwen, Drummer, Composer, and Arranger, provided the music for the intro, outro, proem, and reflection, including Moe’s Blues for Proem and Reflection and Bill Evan’s Time Remembered for on-mic clips.

Podcast episodes on YouTube from Podcast

Inspired by and Grateful to

Steve and Sue Heatherington, Heidi Frei, Matt Neil, Tania Marien, Ann Boland, Leon van Leeuwen

Links and references

Heather Cox Richardson’s Letters from an American on Substack

Weekly Show with Jon Stewart

Kareem Abdul-Jabbar on Substack

Virginia Heffernan’s Magic+Loss on Substack

the Bulwark

Katelyn Jetelina’s Your Local Epidemiologist on Substack

Lyz’s Men Yell at Me on Substack

the Guardian

Sue Heatherington’s fresh sight from the quiet edge.

Episode

Let’s review the body from head to toe: tedious brain loop, dry, sticky mouth, queasy stomach, tight muscles, loose bowels, and bone fatigue. Fear, anxiety, despair, and hopelessness, with a niggling curiosity.

I’m networking and reaching out to loved ones in person and virtually. Searching for facts, trust, and people to follow. I’ve stopped almost all pundits in print, audio, and video. My feeds are changing with more music, comedy, animals, and sports. And algebra—why algebra?

I’m sticking with following Heather Cox Richardson, Jon Stewart, Kareem Abdul-Jabbar, Virginia Heffernan, the Bulwark, Your Local Epidemiologist, Men Yell at Me, the Guardian, and Sue Heatherington’s fresh sight from the quiet edge.

I’ve added AOC, Jeff Jackson, and Isaac Saul’s Tangle.

More music: My Latin Band, Lechuga Fresca, is on hiatus, so I joined a Dixieland Band.

I’m still losing weight—30 pounds so far. I just noticed less abdominal flab to pinch when taking my shots. I can do 20 push-ups and 16 squats and can get myself up off the floor. I walk about 3,500 steps a day. I’m getting a new travel wheelchair.

I have several priorities: don’t fall, progress with MS as slowly as possible, maintain much of my pathological optimism, continue to play my horn, and contribute to inclusive, nurturing communities. The hardest priority may be maintaining optimism.

MS has forced me to exercise my patience muscles. What choice do I have? I can’t run to the bus. If I miss it, I miss it. What muscles will we strengthen over the next four years? I’m a terrible crystal ball gazer, but I know the self-care muscles will need attention. At this moment, I don’t feel the urge to do much of anything except take care of myself and those with whom I’m fortunate enough to share an existence. When a plan comes to me, I’ll share it. If someone else comes up with a plan, I’ll check out the someone and the plan with others I trust. If it makes sense and feels possible for me, I’ll act and maybe even join.

I’m already connected to many extraordinary, trusted communities nationally, internationally, and locally, and I’ll stay connected. However, my priorities, my communities, and the tint of my lenses will likely change.

My comfort will be challenged. I’m very nervous about that. I am so privileged. These muscles will need a strengthening program.

I’m grateful that during our 50 years together, my wife and I built a house, had a kid at home, cared for dying family, home-schooled, and changed locations and careers several times. Our sons are fine dads, married to strong partners, and live nearby.

We could do the unthinkable.  We still can. Those muscles are strong. My Opa survived the Bergen-Belsen concentration camp, and my mother and her parents survived hiding for almost five years. People saved them. I’m grateful for that, too.

So, let’s see what happens. Our paths will unfold.  You know where to find me. Comment. Keep in touch. Take care of you and yours. Open yourself to help when you need it. Help can come out of the woodwork.

Related episodes from Health Hats

50 and 70. Connection and Age. Spiritual Strength.

A Forrest Gump Career: Chance, Gifts, Support, and Privilege

Mighty Casey Quinlan Unplugged #3

Artificial Intelligence in Podcast Production

Health Hats, the Podcast, utilizes AI tools for production tasks such as editing, transcription, and content suggestions. While AI assists with various aspects, including image creation, most AI suggestions are modified. All creative decisions remain my own, with AI sources referenced as usual. Questions are welcome.

Creative Commons Licensing

CC BY-NC-SA

This license enables reusers to distribute, remix, adapt, and build upon the material in any medium or format for noncommercial purposes only, and only so long as attribution is given to the creator. If you remix, adapt, or build upon the material, you must license the modified material under identical terms. CC BY-NC-SA includes the following elements:

Please let me know. [email protected]. Material on this site created by others is theirs, and use follows their guidelines.

Disclaimer

The views and opinions presented in this podcast and publication are solely my responsibility and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors, or Methodology Committee. Danny van Leeuwen (Health Hats)

Danny van Leeuwen

Patient/Caregiver activist: learn on the journey toward best health

Verified by MonsterInsights