Podcast: Play in new window | Download (Duration: 22:15 — 15.2MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Where do veteran advocates point people new to advocacy for skills, resources, and research? What are trusted resources? 15 interviews from Healthe Voices 22.
Podcast: Play in new window | Download (Duration: 18:54 — 13.1MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Patient advocates from the Healthe Voices 2022 conference describe how they recognize success in their advocacy.. Snapshots of diverse lived experiences.
Podcast: Play in new window | Download (Duration: 20:51 — 19.0MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
26 patient advocates from the Healthe Voices 2022 conference describe the moment when they realized health was fragile. Snapshots of diverse lived experiences.
Podcast: Play in new window | Download (Duration: 43:30 — 39.5MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Healthcare decisions affect you and others. Complicated for everyone. Knowledge waiting to be implemented. Join this chat with Dr. Talya Miron-Shatz.
Podcast: Play in new window | Download (Duration: 46:32 — 41.5MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Coaching, critical to my success in life, art, politics, advocacy. Still need to do my own work & make choices. Listen to a session with one of my coaches, Jan Oldenburg.
Podcast: Play in new window | Download (Duration: 6:42 — 6.3MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Take a brief break with several six-word caregiver poems, like ‘Pillow, Pills, Poop, Piss, and Pain’ plus a poem about me from The Good Listening Project.
Read More
Podcast: Play in new window | Download (Duration: 33:50 — 20.0MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
At least 67,000 individuals have died of Covid19 in the US and 244K worldwide so far. Each death is a family’s grief. How do we advocate for ourselves, each other? Palliative care = feeling less miserable. Have you discussed end-of-life and palliative care with your family? Do it now.
Podcast: Play in new window | Download (Duration: 41:23 — 27.4MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Bioethics, the term first coined by someone (who is a controversy) in 1971, includes four principles – respect for autonomy, nonmaleficence (do no harm), beneficence (for me, on behalf of me), and justice. Ken Goodman spoke about two of the four principles autonomy and beneficence. As with much when you start peeling back the layers, bioethics are not simple, not black and white, rather shades of grey.
Podcast: Play in new window | Download (Duration: 13:14 — 14.9MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
Despite what anyone tells you, Clinical Decision Support (CDS) is an experiment. It only gets better with use. We, patients and caregivers, should try it, whatever it is, and learn. Learn what helps us make decisions and what doesn’t.
Podcast: Play in new window | Download (Duration: 1:08:28 — 59.1MB) | Embed
Subscribe: Google Podcasts | Spotify | Stitcher | Email | TuneIn | RSS | More
What can the clowns can teach us as patients and caregivers about relaxing, reading the room, figuring out what you’re there to do, and not ending up more stressed than you went in. Maybe even having a bit of fun. In this podcast we will speak with Jason Stewart, a clown at Boston Children’s and listen in on a working session I led at the National Caregiving Conference in Chicago this past November, entitled, Reading the Room and Yourself. Lessons We Can Learn from the Clowns When We Go to the Doctor’s Office. Lessons from the clowns? Humor, humanity, failure. Reading the room. You are not alone. Read More
