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My son. Mike, died 19 years ago, age 26. Wasn’t born with a tattoo telling him how long he had to live. Blood, married, intentional families. Love & boundaries.
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These three stories, my doctor and me, equity in health systems, care of children with severe heart problems, all contain a problem desperately needing fixing, choices – some based as research, others not – some action taken or no action. How can we continually learn from experience, share that cumulative experience to inform future choice-making and action?
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Duane Reynolds of the Just Health Collective reflects on a layered approach to combating racism. Individuals drive organizations that live within systems.
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I’m not the sharpest knife in the musician drawer. Disheartening. I wish I were better. If wishes made me play better… All I can do? Keep at it. In the last two years. I’ve gone from “I can’t do this, I’m quitting” to “I need to be better.” One foot in front of the other. If this were health, I’d advise that you never get better in a straight line- always many dips and rises. No dip, no rise. I do like the rise. Gotta live with the dips.
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What does healthcare cost mean? I can’t explain it. Listen to Matt Pickering from Nat Quality Forum help us out. Consider serving as a patient rep with NQF.
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Innovation is not like switching on a lightbulb for the world. Rather it’s local iterative, persistent steps. Thoughts from the Patient Experience Symposium.
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Take a brief break with several six-word caregiver poems, like ‘Pillow, Pills, Poop, Piss, and Pain’ plus a poem about me from The Good Listening Project.
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Some people pull hand-over-hand for strands of hope and opportunity in the quicksand of tragedy. The entire family strains to recover from the grief of addiction. I appreciate Sarah Cloud’s person-first approach. People are expert in their own lives. Expert means they know much. Experts still need help connecting dots, creating and executing plans, facing pain, and loving self. Check out Sarah’s series about Mama and Papa Paca.
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Are you a patient-caregiver activist winding down? Let’s chat and hand off to younger people feeling their way & support them as they perceive their needs. Read More
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Person-first measurement of value in healthcare. Chat with Jennifer Bright @IVI_Health. Problem-solving led by people making clinical decisions. Check it out.
